People relativising AS and telling you that you seem 'normal' to them ?.

Hello,

I hate it with a passion when people say to me, often randomly, 'I don't think anyone would have thought that you struggle with asperger's, you seem so normal', and then they say that they themselves struggled to fit in at school for some reason and does that mean they therefore have aspergers? It is like they are questioning the diagnosis by implying I cannot possibly have AS because I am so chatty and extrovert!. They do not realise how their comments make me feel sick inside, the anguish and stess the comments make me feel, particularly when the comments come from people who should know better. My regular support worker understands me and would never relativise my AS, but a support worker who has only recently started working with Autistic adults and who does not have much experience in this field, recently came out with these comments and left me feeling hurt and upset, although in other respects I get on with him. I feel like I am a fake, that my identity is being questioned, and it makes me feel unhappy, like I will be a perpetual outsider, not fitting in anywhere. I don't wish to be defined by asperger's, but it is nevertheless such a big part of my identity and I am so proud of my achievements and successes with regard to fighting back against my anxiety and the negative side of my AS and how my experiences have shaped me as a person. I always feel like I have to justify myself and it makes me feel so tense and upset. Anyway, I felt like replying, what am I supposed to look like as a person with AS? Am I supposed to hardly talk, to be rude and non-compliant or highly distracted?.

Has anyone else with high-fuunctioning AS experienced similar issues? I do feel so unhappy at the moment, but maybe I am being too analytical and taking things too far.

thanks

jackyjoy

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  • Hello @jackyjoy

    I'm learning quickly that everyone with autism is unique. I'm sure there's more to your diagnosis than just struggling to fit in at school and I'd be really interested to know what prompted you to look for a diagnosis. I hope it's ok to ask.

    I posted a question and I'm so terrible at getting to the point I'm not sure anyone's going to reply me. I'm not sure I will be brave enough to embark on a process to investigate whether or not I have autism, partly because I'm worried about a similar situation to what you're facing and not sure it will help me.

    I'm realising that there is so little understanding of autism from the general public, I think you are rightly proud of everything you have got through and achieved. Sorry my response isn't what you're looking for. I hope others with more experience in this journey will be able to help!

  • Trawl through some of the older posts, there's loads asking if they might be AS, whether it's worth getting a diagnosis, etc, and the tool bar on the right will then also show similar poats.

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