Unexpected start of assessment process tomorrow and it's thrown me

I asked my GP to refer my for an assessment in July / August and was told the waiting list was 12 - 18 months. In the meantime I decided to go private and am awaiting my assessment in January. Another reason for going private is that I feel I would get a fair assessment as the place has lots of experience with women. I think I mask very well.

I received a letter yesterday from the NHS referal place (for various reasons I only opened it yesterday when it was dated 27th Nov) to say I have an appointment tomorrow.

That's the only information on the letter - an appointment. So I rang up today and was told it's going to be a conversation to discuss development and family history. She said it's not necessary for my parents to attend but would help (it's an appointment over the phone). She said a more formal assessment would take place in due course at some point in the future.

I'm stressing out about this now. I wanted time to prepare so I don't miss things (even when I visit the GP I prepare cos I know I miss silly things out that might be obivous for some people to say but I only think about it afterwards). If I hadn't rang up, I woudn't have known anything about this as the letter just says "appointment". I've no idea what they are going to ask me so don't know what to prepare anyway.

Also the fact that my parents *could* attend but I haven't been brave enough to approach them about possibly being on the spectrum yet. I was working my way up to that as it's been asked they attend when I have the private assessment in Jan.

I'm still going to keep my appointment tomorrow and the private one in Jan. But it's going to be on my mind all tonight. It's just really thrown me today and added to an already stressful day with work. With the word "appointment" I was expecting more of an informal chat with a view to them saying "yes we will asess you" or "unfortunately we can't assess you".

I'm not looking for any answers from anyone. I just wanted to put it out there.

Parents
  • I'm reaching out. I've struggled today. I have a private assessment coming up which I have decided to keep.  I made further notes today about being on the spectrum. Despite me having had limited socisl situations this year due to covid, and not much changing in my life for thr past few years which has meant very few new socisl interactions, things were coming back to me that YES I DO have difficulties in life. And have had in the past. Cumulative effect being anxiety. Things which gave me problems in the past dont seem to now, but new challemges present.  And I've come across a new youtuber called Yo Samdy Sam which has given me a lot of food for thought. She mentioned "micro rejections" and this was something I was trying to get at in my notes. But she has given me a word to explain what I was trying to mean.

    Two days ago I was saying to my partner "who am I to think I'm autistic?! Who on earth do I think I am?! What am I doing!!? Now I feel very much like "I DEFINITELY am!" and I'll be confused if my assessment turns out to be a no.

    Roll on January. 

  • I came across Yo Samedy Sam just today! From what I've seen so far she seems so relatable. 

    It's all a bit of a roller coaster isn't it? I have similar thoughts. Some days I'm like yep, I'm autistic. That makes sense. Then I'll pick up on things that don't fit the stereotype and doubt myself.

    I've also contemplated the possibility I'll be told I don't have autism. I'd possibly go for a second opinion. But then it's all subjective. 

  • I think this is my last stop. I'm paying for a private assessment. The place comes recommended from NAS and they have a lot of experience with females. I just want a fair hearing is all! It's difficult. ..I'm a very "internal"  person.

    From my CBT sessions, I wonder how much of it could be anxiety. But then there are sticking points which make me think "hmm...there's more to it". How long have you got yo wait for your assessment? 

    Yes she is relatable altho.....it'd be nice to see more autistic northerners. I feel I'd relate more. I like Anna Moomin on youtube. 

  • anxiety is usually caused by the struggles with autism

  • Hopefully they will pick up on masking things due to experience. 

    I have bad anxiety and wonder what comes first? Autism traits or anxiety? Or is the anxiety because of autistic struggles? Similarly I overthink it with other issues too lol.

    I've got to wait at a minimum until March, most likely later.

    Watched some of her stuff too. Its good. 

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  • Hopefully they will pick up on masking things due to experience. 

    I have bad anxiety and wonder what comes first? Autism traits or anxiety? Or is the anxiety because of autistic struggles? Similarly I overthink it with other issues too lol.

    I've got to wait at a minimum until March, most likely later.

    Watched some of her stuff too. Its good. 

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