Autistic husband? Help needed

Hi, I'm new here and really need some friendly advice. I've been married 10 years (late 40s, no kids) but as husband works shifts and I work away a lot, we're not used to spending every day together as we have been in lockdown. Ever since we got together he has had quite violent tantrums and meltdowns which (to me) appear out of the blue. He is super sensitive to noise and panics if he is out of a routine or something hasn't been left where it should be. I've often felt more like a single mum to him than his wife: he shouts and swears at me, slams doors and derides and ridicules me when we are alone or in front of others. Yet most of the time he is kind, funny, loving and sensitive and I've never been able to reconcile the difficult and frankly horrible person he becomes sometimes. 

After one meltdown when he was screaming and yelling abuse at me because the doorbell rang when he was eating his lunch and the dog started barking, it suddenly hit me like a thunderbolt: autism.

I did an online test (the one mentioned on here) answering the questions as if I was my husband and then asked him the questions under the guise of it being for a project thing I'd been doing online. (I was quite vague). Stunningly positive scores both times.

The big question is .... what now? I've tried to discuss it with him gently and supportively in the hope he can maybe get assessed and some support. We both know great young people with Asperger's (who are fantastic teenagers) and yet his reaction to me was rage. He said I was calling him a "spastic". I've suggested several things we could do but he won't listen and blames his behaviour on me.  I've tried to get him to understand that maybe his brain is just wired differently and autism doesn't have to be negative.

Our marriage has been under a lot of strain because of his unpredictable and abusive behaviour to me. While I'm not perfect by any means, I always wondered what caused these sudden outbursts. 

There are so many signs of autism: the obsessive routines, the behaviour which I thought was incredibly rude in front of friends and family, the being unable to cope with a supermarket shop, not wanting to comfort me when I was upset and crying over a friend's death and instead just turning the TV up. I already spend a lot of time soothing and placating and trying to avoid creating stressful situations for him.

So what do I do now? I'm turning to this community because I feel terribly isolated and there is nobody else I can talk to about this. My husband refused point blank to go to couples counselling two years ago, claiming I was the one with issues. I went alone.

Now I feel there is a really strong possibility that husband may be autistic, but he won't hear of exploring it further, I need suggestions about what I can do to help him and our marriage from an autism point of view.I know little about autism in adults but I'm hoping that there is something I can do.

  • Sorry this has been such a long post. Thanks for reading and please be kind - this is my only hope of help and I'm in bits.
Parents
  • hi.  check out Dr Tony Attwood's You Tube videos https://www.youtube.com/watch?v=v-Uqm74g2ew    about aspergers/neurotypical marriage  and https://www.youtube.com/watch?v=QiUhlvOpqAU  on autism and relationships.

    Also, inform yourself on the condition in adults and try to work out his triggers.  Meltdowns happen because the person becomes overwhelmed and cannot cope anymore.  Check out the Autism Live videos too on this site.    Look under resources for reducing anxiety.       I suggest now is NOT the time to try to get a him to agree that he has autism.  He is obviously 'heightened' and his stress thresholds are lower;  which usually means increased sensitivity and anxiety and can lead to more negative thinking. You might find he takes it as a criticism of him and that you think something is wrong with him.  One of my adults had this reaction to his partner.   Try to give him space and find out what his triggers are.  He may have been overwhelmed by your noise and trying to focus on his show and did not really process what you needed.  You have to tell him.  

    You also need to think about what you want.  Understand you will need to make more adjustments and give more support to someone on the spectrum the more heightened they are.  Ask yourself if you love them enough to try to accommodate them or if you have the energy.  

    Better to talk honestly,  Go for a walk together and say, when people are violent and shouting around me it makes me feel unsafe, I love you and want to feel safe.  A lot of people online are getting angry because they are anxious.  or be blunt.  My friend died, I need a hug.  Can you give me a hug?  If he says no, just say that is ok (or not ok) with me and I accept that.

     I say, lets go out for a walk together (if not shielding)  then on walk say, I have been reading that a lot of people online are really anxious and they find it helps (insert solution you have come up with here),  I think it might help us, what do you think?  or suggest he talk to the GP if he can do that.

    A note of warning.  If his tendency is to go to the fight side of the fight or flight response when he is overwhelmed and you cannot work out how to avoid his triggers then he may just not be safe to be around.   You need to stay safe.  If you feel unsafe and think he may attack you, then you may need to leave.  Pack a Go Bag and make a plan to leave and where you will go.  

Reply
  • hi.  check out Dr Tony Attwood's You Tube videos https://www.youtube.com/watch?v=v-Uqm74g2ew    about aspergers/neurotypical marriage  and https://www.youtube.com/watch?v=QiUhlvOpqAU  on autism and relationships.

    Also, inform yourself on the condition in adults and try to work out his triggers.  Meltdowns happen because the person becomes overwhelmed and cannot cope anymore.  Check out the Autism Live videos too on this site.    Look under resources for reducing anxiety.       I suggest now is NOT the time to try to get a him to agree that he has autism.  He is obviously 'heightened' and his stress thresholds are lower;  which usually means increased sensitivity and anxiety and can lead to more negative thinking. You might find he takes it as a criticism of him and that you think something is wrong with him.  One of my adults had this reaction to his partner.   Try to give him space and find out what his triggers are.  He may have been overwhelmed by your noise and trying to focus on his show and did not really process what you needed.  You have to tell him.  

    You also need to think about what you want.  Understand you will need to make more adjustments and give more support to someone on the spectrum the more heightened they are.  Ask yourself if you love them enough to try to accommodate them or if you have the energy.  

    Better to talk honestly,  Go for a walk together and say, when people are violent and shouting around me it makes me feel unsafe, I love you and want to feel safe.  A lot of people online are getting angry because they are anxious.  or be blunt.  My friend died, I need a hug.  Can you give me a hug?  If he says no, just say that is ok (or not ok) with me and I accept that.

     I say, lets go out for a walk together (if not shielding)  then on walk say, I have been reading that a lot of people online are really anxious and they find it helps (insert solution you have come up with here),  I think it might help us, what do you think?  or suggest he talk to the GP if he can do that.

    A note of warning.  If his tendency is to go to the fight side of the fight or flight response when he is overwhelmed and you cannot work out how to avoid his triggers then he may just not be safe to be around.   You need to stay safe.  If you feel unsafe and think he may attack you, then you may need to leave.  Pack a Go Bag and make a plan to leave and where you will go.  

Children
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