Carers of severely non verbal autistic young adults

I am possibly going to care for a 19 year old young lady with severe Autism.

My own son aged 12 is going through the process of being diagnosed (highly likely that he is)and possibly ADHD so I have knowledge to a certain extent.

Are there any carers on this page that can give me any advice, this particular young lady can pull hair etc when highly anxious. Mum is looking for 1;1 care 3 days a week of which I am very interested in and would like to find out as much as I can to help. I am possibly going to be working alongside another carer and the mum to begin with until the daughter gets to know me and vice versa. She has had a behaviour plan drawn up recently after lots of change in the last year.

I have never been a carer before although used to be a childminder, the young lady is non verbal and uses an app.

Are there any carers of autistic adults support groups about ?

Thank you

aidie over 5 years ago in reply to NAS65492

awesome

thats the same person, Naoki Higashida, in "fall down 7 times get up 8" and his previous book 'The Reason I jump' .

Was 'The Reason I jump' good ?

was 'Can you see me' good ?
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NAS65492 over 5 years ago in reply to Deleted User

Thanks very much Ross I will have a look.
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NAS65492 over 5 years ago in reply to aidie

Thank you I will have a look at, I've read a few books 'The Reason I jump' by an autistic boy and 'Can you see me' about an autistic girl.
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Deleted User over 5 years ago

Hi NAS65492,

You might want to take a look at the page here on the NAS site about support for carers - https://www.autism.org.uk/about/benefits-care/community-care/support-for-carers.aspx - which contains information on support and rights for carers of people with ASD, and has links at the bottom of the page to several different organisations like Carers UK, Carers Trust and Carers Allowance. You could also look in our Autism Services Directory for support groups for carers in your area - https://www.autism.org.uk/directory.aspx - you can browse by category, location or search for something that is hopefully right for you.

Hope this is of some help,
Ross - mod
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aidie over 5 years ago

i just read a book written by a non-verbal. Its one of the best books I ever read. It is called "fall down 7 times get up 8". Each chapter is 2 pages because he wrote tt very slowly, letter by letter, but the communication of how a non-verbal sees,feels, and experiences is really eye opening. It like a manual on what is going on in the head of a non verbal. The similarties between a non-verbal and the high functioning types of autism was quite striking for the likes of me

click on me i am a link to amazon uk to the book

i have lent my book to a parent/friend of a non-verbl so she can pick up some tips. But I am going to read it again, when I get it back. It just contained good sound advice.
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