Called Lazy...

So, the father of my boyfriend told my boyfriend today that i'm useless and that my sleeping habits have nothing to do with autism but being lazy.  So much for getting a diagnoses and aiming for acceptance ;) Well, anyway. I'm so called lazy cause i don't work... i don't get up early, i'm currently in a bad habit of sleeping til 1pm in the afternoon. I have NO energy left in my entire body... i am behind the computer almost all day or behind my PS4 in the sofa... I enjoy being at home cause i can relax as i have to deal with a lot of worries and thoughts in my head. Sometimes, i just FEEL that i can't do anything. I have to even force myself to take a bath or to even make a payment. I'm in a severe auti- burn out... for years now. I don't take medication as i'm scared of the side effects. I am just scared of everything ... but i hate being called ''lazy''...  My partner also has autism but less severe as he takes medicine... He used to be pretty much like me too in the past but due the medication he can function. He even has a job now... but his parents kinda forced him and they ignore his autism for the most part. Today they had a fight cause he did not want to help his dad with a task and they all blame it on me. They think he will become lazy too. It's partly true, cause its a very toxic relationship (not us as people but our concerns, and our autism, that i wrote in another post on here) So i can understand his lack of energy too and that he refuses to help his parents on occasions when he is tired. But i really can't take it, that i have a diagnoses now and that people STILL call me lazy..... and talk about my shortcomings. NOTHING has changed since my diagnoses, nothing! :( 

Are there people on here with similar problems?

Moonmaiden

Parents

  • So, the father of my boyfriend told my boyfriend today that i'm useless and that my sleeping habits have nothing to do with autism but being lazy. 

    An absolute run of the mill classic, i.e., where people are unable to tell the difference between laziness and exhaustion, and rather than your sleeping habits having nothing to do with autism ~ it is obvious as such that your boyfriend's father does not really understand or comprehend what autism as a neurological and physiological condition involves, just yet.


    Autistic fatigue in daily life and the causes

    So, the next time you go to say to me (or somebody like me) that you’d never have known I’m autistic, consider the following. Each morning when I leave the house my anxiety kicks in. Within minutes my heart rate has increased and my breathing has become much more difficult. I don’t usually even know why. It’s probably because, no matter how planned it is, you never really know what each day is going to bring. For the autistic person that is stressful. When I get to wherever it is I’m going it usually involves entering a building. That plays havoc with my senses. New sights, sounds, smells and people. I have trouble filtering sound so it comes at me all at once and with the volume turned to maximum. I have difficulties with certain lighting which makes me very dizzy and disorientated. But I smile and reattach the mask and I play my role. Throughout my day I often have to socialise to some degree. I have to figure out when it’s my turn to talk, when to smile, what body language to use and to make it all look natural. By then I usually have a headache and throughout the day I’m battling with nausea and stomach pains as, like many autistic people, I have several co-morbid conditions. Later on I may have the school run to do which will involve a whole new set of rules that don’t come with a manual. A different set of people that I may have to interact with and a change of setting with different sounds and distractions to contend with. A new role to play. All of this I may have had to do on three hours sleep because I don’t sleep well. My brain doesn’t seem to know how to switch off. By the time I get home for the day I may want to retreat to a quiet corner for a while and simply not speak. So, when you next hear an autistic person say that they’re all “peopled” out don’t dismiss it, especially if you think they don’t seem to have done much that day. Autistic fatigue is very real and it is truly exhausting.

    https://livingautism.com/autistic-fatigue/


    So much for getting a diagnoses and aiming for acceptance ;)

    It does help to keep in mind that aiming for acceptance can involve missing it ~ to begin with at very least anyway. It took my family a few years to get past recognising me as supposedly having been out of order sociologically ~ rather than me being of a different order neurologically and physiologically.


    Well, anyway. I'm so called lazy cause i don't work... i don't get up early, i'm currently in a bad habit of sleeping til 1pm in the afternoon.

    For those of us who have a particular hypersensitivity to ultraviolet (UV) light, getting up at or around midday is not unreasonable as that is when UV light intensity is on the way to calming down, whereas before which UV light intensity is of course increasing. When I used to try to sleep during the night I was too hypertensive to do so because of the UV light stimulation going on through the day, and now that I sleep during the day until 2pm ~ I even get to feel calm during the night and relaxed enough to fall sleep in the morning!


Reply

  • So, the father of my boyfriend told my boyfriend today that i'm useless and that my sleeping habits have nothing to do with autism but being lazy. 

    An absolute run of the mill classic, i.e., where people are unable to tell the difference between laziness and exhaustion, and rather than your sleeping habits having nothing to do with autism ~ it is obvious as such that your boyfriend's father does not really understand or comprehend what autism as a neurological and physiological condition involves, just yet.


    Autistic fatigue in daily life and the causes

    So, the next time you go to say to me (or somebody like me) that you’d never have known I’m autistic, consider the following. Each morning when I leave the house my anxiety kicks in. Within minutes my heart rate has increased and my breathing has become much more difficult. I don’t usually even know why. It’s probably because, no matter how planned it is, you never really know what each day is going to bring. For the autistic person that is stressful. When I get to wherever it is I’m going it usually involves entering a building. That plays havoc with my senses. New sights, sounds, smells and people. I have trouble filtering sound so it comes at me all at once and with the volume turned to maximum. I have difficulties with certain lighting which makes me very dizzy and disorientated. But I smile and reattach the mask and I play my role. Throughout my day I often have to socialise to some degree. I have to figure out when it’s my turn to talk, when to smile, what body language to use and to make it all look natural. By then I usually have a headache and throughout the day I’m battling with nausea and stomach pains as, like many autistic people, I have several co-morbid conditions. Later on I may have the school run to do which will involve a whole new set of rules that don’t come with a manual. A different set of people that I may have to interact with and a change of setting with different sounds and distractions to contend with. A new role to play. All of this I may have had to do on three hours sleep because I don’t sleep well. My brain doesn’t seem to know how to switch off. By the time I get home for the day I may want to retreat to a quiet corner for a while and simply not speak. So, when you next hear an autistic person say that they’re all “peopled” out don’t dismiss it, especially if you think they don’t seem to have done much that day. Autistic fatigue is very real and it is truly exhausting.

    https://livingautism.com/autistic-fatigue/


    So much for getting a diagnoses and aiming for acceptance ;)

    It does help to keep in mind that aiming for acceptance can involve missing it ~ to begin with at very least anyway. It took my family a few years to get past recognising me as supposedly having been out of order sociologically ~ rather than me being of a different order neurologically and physiologically.


    Well, anyway. I'm so called lazy cause i don't work... i don't get up early, i'm currently in a bad habit of sleeping til 1pm in the afternoon.

    For those of us who have a particular hypersensitivity to ultraviolet (UV) light, getting up at or around midday is not unreasonable as that is when UV light intensity is on the way to calming down, whereas before which UV light intensity is of course increasing. When I used to try to sleep during the night I was too hypertensive to do so because of the UV light stimulation going on through the day, and now that I sleep during the day until 2pm ~ I even get to feel calm during the night and relaxed enough to fall sleep in the morning!


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