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Murmu
over 4 years ago

Hello. I got diagnosed with ASD about 2 months ago. Immediately I felt relief - like things made sense, I had some additional information about me which I could use to try and be a bit kinder to myself. I plunged into reading everything I could but got a bit overwhelmed and now just feel totally lost. I need to work things out, work out who I actually am after 40+ years of knowing I was different but not understanding why - and I need some help to do that I think from people whose brains work like mine or who have been through this. I keep reading that I am now part of an autism community but I don't know what that means. I don't know anyone else in real life who is autistic and I'm not great with people anyway so would rather some internet based thing. There seems to be loads of website and forums but I don't know where to start. Does anyone have any recommendations of friendly online places? I've had good advice on here as I was waiting for the assessment so thank you for that.  

Parents
  • over 4 years ago

    Hi, Murmu - welcome to the group. How long did you have to wait for your autism assessment? I've been on the waiting list for over a year now, so I'm really hoping I don't have to wait too much longer. I'm mostly managing to put it out of my mind, but it's tough sometimes.

    I've never tried them myself, but it might be worth looking at the National Autistic Society's local groups. I know they're not internet-based, but I'd imagine you wouldn't be the only one who feels a bit uncomfortable around people: https://www.autism.org.uk/services/community/group.aspx

    Hope you get some good suggestions and find a community that works for you :)

  • over 4 years ago in reply to DuckBread

    Thanks - I don't want to attend an in person group though. I waited between 6 to 9 months I can't remember exactly. I said I was available for short notice and cancellation appointments though so I don't know if that speeded things up

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  • over 4 years ago in reply to DuckBread

    Thanks - I don't want to attend an in person group though. I waited between 6 to 9 months I can't remember exactly. I said I was available for short notice and cancellation appointments though so I don't know if that speeded things up

Children