Hi, i'm a 34 year old female recently diagnosed with Autism from Belgium.
It wasn't big news to hear i'm on the spectrum because i kinda knew already that this was the case since longer and i have a brother who is on the spectrum as well, and probably my father too who is undiagnosed.
I always refused to get myself tested because i was a happy and bright girl and tried to be independent like my peers but it was always with a mask on and great difficulties. Everything is a struggle, from going to bed at night on time (always slept very late) to being anxious about new situations and change, scared what other people may think of me in social situations, getting dressed on time and what to wear, getting out of the house is a big struggle, crossing the streets etc...
And yet, i'm a very clever woman, i like philosophical topics, i like to act and perform on stage, i like music and good at it, writing and so on, i have manners and etiquette and i have a good eye for detail and good taste for furniture and clothes. I'm very good in speech and communication, and always know what to say to people in certain situations even offer help, in short, most of my friends and people i know see me as a very intelligent person and YET, i scored 65 on the IQ test they offered me during my testing which is extremely low. I always knew i had learning difficulties and that i'm slow in picking up things but that my IQ would be so low, is a slap in the face...I am desperate for answers and people in my environment are shocked by this result. The place where i took the test called me mentally weak (don't want to use the R word) They told me its due to my autism, that my autism is bringing down my intelligence (in the moment) I can relate to that cause when i did the IQ test i was often nervous and had a hard time focussing on things. So it surely pushes down my intelligence but i don't want to be on par with people who have mental weaknesses such as people with let's say Down Syndrome, although i think those people are amazing and lovely people. But i'm so confused because you would never guess i have such a low IQ on hearing me talk and meeting me. Most people are even shocked i have Autism cause i blend in well with other people. I do tend to have a unique look on life and i'm very compassionate but that graces me.
So i'm wondering what those IQ tests actually mean on people with autism and i'm thinking the worst now, and i have been crying since then. Feeling so worthless and small now. But it's probably very different from other people with mental challenges. I don't know, can someone tell me more?
Thanks so much!
Hi! I’m a 39 year old woman, I was diagnosed when I was 37. I find it difficult to believe that your IQ is 65. Someone with an IQ of 65 would have significant intellectual disability and struggle to articulate themselves as well as you have. Do you know the specific IQ test that was used? I ask because there are different ones. Autism does not bring down a person’s IQ. In fact I read recently that while the percentage of the general population with an IQ of genius level is less than 1%, in the autistic population it’s about 45%! I love the name Moonmaiden Please make this your username!
The test they took was the WAÏS-IV-NL, it has different categories such as, verbal understanding,
reason, memory and how fast you process information. For verbal i have 77, reason 62, memory 68, and speed of progressing information 73 and the total score of 65.
They sent me another email because of my concern and told me it's due the autism that i scored low, that if there was another test that took in account i could get distracted or could get out of focus at the moment that i would score higher. So i feel more relaxed about it now...but i have doubts about myself now... I know we should not use the names ''High and low functioning'' but where do i stand?
It's confusing because i also don't believe that's my actual IQ - i'm really clever but i'm slower and i can get distracted easily.
My concern is that i'm scared to be called intellectual disabled... I have a very low self esteem and that makes it even worse.
Of the 75 children with ASD, 55% had an intellectual disability (IQ<70) but only 16% had moderate to severe intellectual disability (IQ<50); 28% had average intelligence (115>IQ>85) but only 3% were of above average intelligence (IQ>115). There was some evidence for a clinically significant Performance/Verbal IQ (PIQ/VIQ) discrepancy but discrepant verbal versus performance skills were not associated with a particular pattern of symptoms, as has been reported previously. There was mixed evidence of a characteristic subtest profile: whereas some previously reported patterns were supported (e.g. poor Comprehension), others were not (e.g. no 'peak' in Block Design). Adaptive skills were significantly lower than IQ and were associated with severity of early social impairment and also IQ
For reference, Forrest Gump was supposedly around 70/80 IQ. A fictional character I know, but it gives you an idea.