Newly Diagnosed and low IQ

Hi, i'm a 34 year old female recently diagnosed with Autism from Belgium. 

It wasn't big news to hear i'm on the spectrum because i kinda knew already that this was the case since longer and i have a brother who is on the spectrum as well, and probably my father too who is undiagnosed. 

I always refused to get myself tested because i was a happy and bright girl and tried to be independent like my peers but it was always with a mask on and great difficulties. Everything is a struggle, from going to bed at night on time (always slept very late) to being anxious about new situations and change, scared what other people may think of me in social situations, getting dressed on time and what to wear, getting out of the house is a big struggle, crossing the streets etc... 

And yet, i'm a very clever woman, i like philosophical topics, i like to act and perform on stage, i like music and good at it, writing and so on, i have manners and etiquette and i have a good eye for detail and good taste for furniture and clothes. I'm very good in speech and communication, and always know what to say to people in certain situations even offer help, in short, most of my friends and people i know see me as a very intelligent person and YET, i scored 65 on the IQ test they offered me during my testing which is extremely low. I always knew i had learning difficulties and that i'm slow in picking up things but that my IQ would be so low, is a slap in the face...I am desperate for answers and people in my environment are shocked by this result. The place where i took the test called me mentally weak (don't want to use the R word) They told me its due to my autism, that my autism is bringing down my intelligence (in the moment) I can relate to that cause when i did the IQ test i was often nervous and had a hard time focussing on things. So it surely pushes down my intelligence but i don't want to be on par with people who have mental weaknesses such as people with let's say Down Syndrome, although i think those people are amazing and lovely people. But i'm so confused because you would never guess i have such a low IQ on hearing me talk and meeting me. Most people are even shocked i have Autism cause i blend in well with other people. I do tend to have a unique look on life and i'm very compassionate but that graces me.

So i'm wondering what those IQ tests actually mean on people with autism and i'm thinking the worst now, and i have been crying since then. Feeling so worthless and small now. But it's probably very different from other people with mental challenges. I don't know, can someone tell me more?

Thanks so much!

Moonmaiden

    • Well I’m really envious of you. I have an IQ of 150, was 2 years ahead in maths at school, but have been hopeless in social and artistic skills and been in deep trouble with police and financial loss. If I had your skills I’d be in a much better place and good life expectancy.
    • IQ scores were invented by scientists and so are biased to make us look good when we have huge problems 

  • It suggests either the scientists are racist, or that your ethnic background is a big determinant of your intelligence. I'm not sure which is the better answer.

    I think more perhaps that the format of an intelligence recognition system is similar in effect to a particular language, and being that there are many languages there are many types of intelligence and one is no greater a sign of mental capacity than any other ~ just better suited in particular locations where the language is used or instances when it is spoken.


  • I agree with Kitsune that it is unlikely you have moderate learning difficulties.
    It is a scientifically established well known fact that the test that they used on you underestimates autistic intelligence by as much as 75 points (!) That means you could have an IQ of 135...
    It is documented in these article: https://www.ncbi.nlm.nih.gov/pubmed/25308198

    This article shows which test is more reliable for measuring autistic intelligence:  https://journals.sagepub.com/doi/10.1111/j.1467-9280.2007.01954.x

    If this upsets you, ask for a second opinion using Raven progressive matrices.
    You may tell your doctor that they should have known WISC is unreliable for autistic people and they should have used a different assessment. You paid them money, they should come up with the goods that are meeting your needs.

  • It suggests either the scientists are racist, or that your ethnic background is a big determinant of your intelligence. I'm not sure which is the better answer.

  • For reference, Forrest Gump was supposedly around 70/80 IQ. A fictional character I know, but it gives you an idea.


  • That map raises some uncomfortable issues. Whether it is right, or whether it is wrong, it suggests that scientific research is driven partly by politics.

    Yes ~ sociologically very much. Bias is often overlooked or little considered. Check out for instance the '9 Types of Unconscious Bias and the Shocking Ways They effect Your Recruiting Efforts' article via this link:


    https://www.socialtalent.com/blog/diversity-and-inclusion/9-types-of-bias


  • Hi!

    As the others say above, it's impossible for you to have 65 IQ. I have met people with 65 IQ but only in nursing homes as they has troubles with taking care of themselves. And based of your writing, your IQ has to be much-much higher.

    I know what you're feeling, I felt the same when I did an IQ test and it turned out to be around 100, because I hoped it to be higher. Next time I had to do an IQ test in school, I scored 140 because that was the highest possible score on that certain test (if you got every question right, that would mean 140).

    The problem probably was for me, that I'm really bad at math, and the first IQ test have decent amount math in it. The second one had shapes and patterns, so it was really easy for me, but my classmates struggled, some scored even 90. So it really depends on a type of IQ test you do. I was just saying my own example, everyone's different. (Also I'm neurotypical)

    If the result still makes you sad, maybe you should also try the second one with patterns and shapes, because it's harder to misinterpret since it has no text, and the teacher who made us do it is also teaching in a school for kids with special learning needs, so they use it for kids with ASD. The only problem is that since we did it on paper, I don't know if it's available on the internet.

    Also the accurateness of the IQ tests really depends of the region, because for example the circumstances growing up, education and living are different. It can even depend on your current mood.

    I hope I could help!

  • That map raises some uncomfortable issues. Whether it is right, or whether it is wrong, it suggests that scientific research is driven partly by politics.

  • I don't actually believe from what you've written there you have an IQ in the 65 range. You write clearly in English, yet it must be your second language after French, Flemish or German.

  • I agree with plastic. Also think back to how the questions were worded and if you understood them the wrong way. I do this often. I'm usually very literal

  • You certainly don't come across as mentally weak. You know yourself better than anyone, so don't let anyone convince you that you're not bright and clever Slight smile

  • Thanks Slight smile

    And yes, i think you are right. Our brain works different and we are influenced by other things.

  • Hi Duckbread,

    Thanks for your reply and kind words Slight smile 

    I think you are spot on when you say that my nerves could have affected the performance. My brain is never really thoughtless even when i focus on something, sometimes other things pop in my mind. I received an email back from the centre i took the test and she told me that it's due the autism, not the autism that brings down my IQ but the autism influenced it. Yet, she could not clearly tell me when i asked if that means i have an intellectual disability too which is often the case with autistic people. And that's my concern. Because i know i'm bright and clever. They did write on my papers that i am mentally weak. (below average) I hope it's just the autism and nothing else.

  • Yes, you are right Slight smile

  • Hey Kitsune,

    The test they took was the WAÏS-IV-NL, it has different categories such as, verbal understanding,  

    reason, memory and how fast you process information. For verbal i have 77, reason 62, memory 68, and speed of progressing information 73 and the total score of 65.

    They sent me another email because of my concern and told me it's due the autism that i scored low, that if there was another test that took in account i could get distracted or could get out of focus at the moment that i would score higher. So i feel more relaxed about it now...but i have doubts about myself now... I know we should not use the names ''High and low functioning'' but where do i stand?

    It's confusing because i also don't believe that's my actual IQ - i'm really clever but i'm slower and i can get distracted easily. 

    My concern is that i'm scared to be called intellectual disabled... I have a very low self esteem and that makes it even worse.

  • Hi, Moonmaiden. It sounds like we have a lot of similar experiences and interests (I love music, stage and writing too) :)

    You don't sound unintelligent at all - you sound very bright and articulate. If I were you, I wouldn't focus on the results of the IQ test - it's just a number and it doesn't matter. Your nerves could have affected your performance (whereas you might have got a much higher score under less pressure), and like Plastic suggested, it may just be that it's a test designed for neurotypical people who don't understand how the autistic brain works.

    The IQ test won't change your future in any way (I don't even know my IQ and have never been asked for it), so try not to dwell on it.

  • Hi! I’m a 39 year old woman, I was diagnosed when I was 37. 
    I find it difficult to believe that your IQ is 65. Someone with an IQ of 65 would have significant intellectual disability and struggle to articulate themselves as well as you have. Do you know the specific IQ test that was used? I ask because there are different ones. Autism does not bring down a person’s IQ. In fact I read recently that while the percentage of the general population with an IQ of genius level is less than 1%, in the autistic population it’s about 45%! 
    I love the name Moonmaiden Slight smile Please make this your username!

  • My IQ is 144 and I've met people with half of that, who I would say are smarter than me.

    Don't worry about it too much, it's just points.


  • I was once asked to join a group of people who had rather high IQ scores. It was really good as I did not have to explain so much stuff nor simplify it. Unfortunately the highest IQ type of the group got uncomfortable with me being able to relate not only with them, but also to introduce higher and more complex considerations to everybody else too. The top IQ type was really into imagining they were better than everyone else in the group, and challenged me to an IQ test showdown. It was kind of amusing really given that someone with one of the highest IQ scores in the hundreds was trying to beat me with an IQ score that in the showdown came to 60.

    Perhaps consider the following article's opening paragraph or read the short article via the link:


    IQ is a really stupid concept

    It's stacked against most of the world.

     Too many of us use the terms “IQ” and “intelligence” as if they’re interchangeable. They’re not. An IQ score isn’t a magical signifier of smarts; it merely quantifies your ability to take a particular kind of test. Wealthy, white Westerners tend to perform among the best on these exams, but that doesn’t mean they’re smarter than the rest of the world. Research increasingly indicates that the advantages that group enjoys—like better education and healthcare—set them up for success on such evaluations. And it doesn’t hurt that the most expensive education is generally geared toward improving one’s ability to fill in the proper bubbles. Access to money, school, and medicine can all change apparent acumen—but IQ ignores inherent intellect. Race In some parts of the world, kids given IQ assessments were unfamiliar even with the concept of standardized testing, let alone with the question format or subject matter. The established correlation between race and IQ doesn’t reveal an inherent genetic advantage. It shows how closely your score is tied to health, wealth, and access to education.

    https://www.popsci.com/why-iq-is-flawed/


    There is also this article stating much the same:

    If we were really smart, we’d get over our fixation on the IQ test


  • May i ask, why the iq is such a concern? focus?

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