New here (struggling with accepting my autism)

Hi everyone,

I'm new here. I'm 29 years old, I got my official diagnosis (Asperger's syndrome) almost three years ago and yet I'm still struggling to accept that I'm autistic. I often feel embarrassed about the ways in which I behave, speak, move ... even though it feels so natural to me. I'm terribly at pretending I'm someone else, someone who's neurotypical. I tried but it hollowed me out ... being around other autistic people really helps me so I thought I'd join the forum. 

I also have chronic epilepsy. Does anyone else here have epilepsy and autism? I'd love to talk.

Lea

  • They should! I loved the bit with Julia - it was so sweet Slight smile

  • Yeah, I can't watch or download it at all on the BBC's website. They should upload it on Youtube for everyone to enjoy. :) I really enjoyed the bits that I watched so far. The scene when he met Julia at the Sesame Street theme park was awesome, when Julia covered her ears because of the loud noise and Jaco told her to relax. I've never emphasized more with a puppet.  ;)

  • Oh no Disappointed I'm not sure. It looks like you can watch some of Richard and Jaco's news appearances on YouTube, but I don't think you can get the full episode. That's a shame.

  • That programme looks amazing but I can't watch it since I'm outside the UK. :( Do you know where else I can find it?

  • Glad you're feeling a little better.

    You're exactly right - the people who mock you are the ones with the problem. You should always be yourself and be proud of who you are (although I know that's easier said than done when you're naturally insecure).

    I watched a great programme last week - 'Richard and Jaco Take on the World'. It's all about raising awareness of autism to make the world a friendlier place for us. You can catch it on BBC iPlayer if you're interested Slight smile

  • Hi everyone,

    thank you all for your kind words, they're much appreciated. I had a series of small seizures this morning and when I came out of them and deiced to read your replies on my phone I instantly felt better. You're all making me feel less alone. :)

    And you're right, I don't have any reason to feel embarrassed or ashamed. The people who are mocking me when I'm flapping my hands or rocking or when I about my favorite subjects without pause should be ... it would be such a relief to do that in public without embarrassment. I guess I just need to accept my autism better but it's hard without much support..

    Thank you, again,

    Lea

  • Hi, Lea - welcome to the group Slight smile I haven't had my diagnosis yet (still waiting for the assessment), but it seems a lot of people go through similar feelings. 

    I get embarrassed too sometimes, but it's important to try not to over-analyse everything you say and do. There's nothing wrong with being different - the world would be a very boring place if we were all the same. 

    I don't have epilepsy, but I have family members who do, and I can see the strain it puts on them. Hopefully you'll find someone with similar experiences in the forum.

  • HFA = high functioning autism :)

  • Hi Lea, 

    Sounds like you need to hear something like this...

    Congratulations! You're autistic. This is the start of you seeing the beauty in yourself. The vibrancy that exists inside your soul, the colours you exhibit, some of the neurotypicals may never experience! It is OK to be different, it's actually really great.

    Please don't self assess yourself and compare yourself to others. Don't think of your quirks as embarrassing. Think of them as an ingredient to your individual genius. Stop stressing about who you think you are and be proud, strong, and authentic.

    The day you start to be authentic is the day you will start to change, let yourself evolve, and grow into you. After all, stressing about that which really needs not to be stressed... Takes away from your capacity for other intellect or interest...

    Believe in yourself. Accept yourself... And love yourself Lea Blush

    From HP with HFA 

    Sorry I don't have any relations to epilepsy. You're still awesome though :) 

  • Hello and welcome, Lea! I have also recently come onto the forum, having been diagnosed with Level 2 ASD. Please do feel free to ask any questions and read my profile. I'm sure that everyone on here will give their best advice.

    There is no need to feel embarrassed about the way that your Asperger's makes you behave. It is just an element that makes you who you are. Remember, you are NOT odd, just unique. 

  • not epilepsy  autism is enough on its own you have a lot on ur plate ----  if u havent been here before welcome