New diagnosis- starting to get a bit wound up

Hi all,

I'm four weeks into being diagnosed. I'm 50+. Just wondered if you went through a negative patch soon after getting a diagnosis. I'm in a strange place at the moment (stranger even than normal everyday life of course) I've started unconsciously reevaluating all my past, post-diagnosis (tiring) I guess this is a normal reaction? 

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  • Yes, what you're experiencing is very common indeed for those us receiving a diagnosis later in life, and you'll find many people here who have been through very similar experiences. Ruminating about past events which can now be viewed in a different light is very common. Coming to terms with decades worth of unanswered questions, and uncertainty about how responsible we should feel for past errors and misunderstanding does take some time, and it is very tempting to overwhelm ourselves by trying to answer them all at once. It can be quite a roller-coaster ride of different emotions for a while, but things will settle down in time.

    Try not to feel rushed into explaining yourself to the people around you until your feelings have settled a bit, and try to remember that your diagnosis hasn't fundamentally changed you at all. It's not an indulgence to allow yourself a bit of time immersed in hobbies or interests to give your mind a bit of a rest.

    The people here are wonderfully supportive and knowledgeable, and there really is no such thing as a "stupid question". Forums like this one were a massive help when I was going through that process - not just reading other people's experiences, but also gaining a sense of perspective by trying to put my own feelings into writing. So if there are any particular issued which are bugging you, don't be afraid to come and ask rather than letting them fester.

    Best wishes.

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