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Post Diagnosis Blues

Kitsune

This is a bit of a delayed reaction as I was actually diagnosed last December. I thought that I’d managed to avoid being too emotionally ‘affected’ by the diagnosis. However, I’ve had a bit of a vulnerable feeling creeping up on me for the past couple of weeks and it’s hit me full thwack today! I’m struggling with how autism makes me and I’m struggling with how the combined effect of brain injury plus autism makes me. I feel like the most stupid person in the world right now, someone who just goes through life blindly trusting people, always trying to see the best in people, never able to see when people are just playing me. I usually always try to keep positive and upbeat but I’m just feeling really overwhelmed by how socially naive my dual neurological diagnosis makes me. 

Parents

  • Must be something in the water at the moment (or maybe it's the heat?) I'm bumping along on zero spoons today...

    Picked up my official diagnosis report today too so I guess that has an impact.

    So fed-up with autism right now, I just 'want my life back'...

    Going to take a break from the forums I think.

  • in reply to Original Prankster
    Original Prankster said:
    So fed-up with autism right now, I just 'want my life back'...

    At this early stage it's a strange time. You can lose yourself in the diagnosis at first. I did.

    I'd say take a step back, and spend time thinking about who you are, and have always been. You can get too deep into autism, and not think about who you really are. Forget the paperwork, and clear your mind for a bit. Not saying ignore it all, but in my own personal experience I had to just clear my mind for a while.

    Yes, you have autism, but there's so much more to a person than that. It's better to know you, than everything about autism. Hope you find your way and get things back on track.

    All the best.

  • in reply to Cloudy Mountains

    The irony is that being autistic will mean being given a diagnosis of being autistic is likely to trigger a bunch of autistic traits...

  • in reply to Cloudy Mountains

    Aw sorry to hear that! Mind you I think that overthinking or thinking in loops  is part of the nature of autism so we’re destined to be overthinking about something, whether it’s about autism itself or something completely unrelated. 

    Yeah I think I understand what you mean, that it’s better to learn about bits of autism as and when that ‘bit’ becomes relevant, as opposed to just learning absolutely everything about autism all at once when half of it’s not even useful?? Better to just pick out the bits that apply to us and are helpful.

  • in reply to Kitsune

    I still have days where I can over-think stuff.

    I think that learning certain things is as important as "unlearning" others, if that makes sense.

    I think that it's good to learn as you go, rather that learn everything first, including stuff that doesn't help or apply to us, then have to "unlearn" to stop yourself over-thinking.

    Dunno if that makes sense, but you can know too much when it comes to something that relates to you. Autism is such a mixed bag it's best to pick and choose the right information.

    No problem at all! Trust me the fallout after diagnosis is always something I don't like to see people go through! It can be rough!

Reply
  • in reply to Kitsune

    I still have days where I can over-think stuff.

    I think that learning certain things is as important as "unlearning" others, if that makes sense.

    I think that it's good to learn as you go, rather that learn everything first, including stuff that doesn't help or apply to us, then have to "unlearn" to stop yourself over-thinking.

    Dunno if that makes sense, but you can know too much when it comes to something that relates to you. Autism is such a mixed bag it's best to pick and choose the right information.

    No problem at all! Trust me the fallout after diagnosis is always something I don't like to see people go through! It can be rough!

Children
  • in reply to Cloudy Mountains

    Aw sorry to hear that! Mind you I think that overthinking or thinking in loops  is part of the nature of autism so we’re destined to be overthinking about something, whether it’s about autism itself or something completely unrelated. 

    Yeah I think I understand what you mean, that it’s better to learn about bits of autism as and when that ‘bit’ becomes relevant, as opposed to just learning absolutely everything about autism all at once when half of it’s not even useful?? Better to just pick out the bits that apply to us and are helpful.