What next? Processing my diagnostic report.........

Just sharing some thoughts and hoping for some suggestions / thoughts..........

My diagnostic report tells me that I meet the criteria for deficits in social communication and interaction, but when it comes to the other necessary criterion of restricted and repetitive behaviours, I meet only one of the two required subcategories (I meet the "sensory differences" one).

This means I would have a positive diagnosis if I met the criteria for any of a) stereotyped and repetitive behaviours, b) restricted and fixated interests or c) response to routine and change.

I think I can agree with my report that I don't meet these - but I can see them in myself, especially the relief from stress that I get from being absorbed in a hobby, and my dislike of doing things that are outside my routine. But maybe this is normal. It strikes me as difficult to call objectively and I have to trust the expertise of the assessment team here.

I have been referred for an ADOS test, but I really can't see how this will change anything, as the ADOS test focuses on "communication, social interaction, and play (or imaginative use of materials)" - which won't offer anything to modify the call already made on the criteria that I don't meet the threshold for.

I've learned through this process that what matters is that I understand myself and give myself permission to be kind to myself, and the report helps me by stating that I *do* have differences in social behaviours and sensory sensitivity - and to be honest these are the ones that I know cause me stress and having that reflected formally is helpful.

I guess I'm just left wondering what's *actually* different about my brain. But I guess none of us knows this in detail anyway!

But I'm also left feeling a little deflated and not hopeful that the ADOS test - with another wait, travel & day off work, and another wait after that - will help with anything.

There is also the issue of feeling a little like a fraud now, but I guess I can deal with that!

Parents
  • I just want to say thanks for sharing your journey. I'm recently self-diagnosed aspie (light bulb, eureka, epiphany!) and seeking a formal diagnosis through the NHS. It's been a few months and I have no idea where I am in the process... I share so many of your concerns so it's nice to feel 'in good company'.

Reply
  • I just want to say thanks for sharing your journey. I'm recently self-diagnosed aspie (light bulb, eureka, epiphany!) and seeking a formal diagnosis through the NHS. It's been a few months and I have no idea where I am in the process... I share so many of your concerns so it's nice to feel 'in good company'.

Children
  • You're welcome - & thanks for taking the trouble to say thanks, it means a lot.

    There's a lot of mutual recognition of thought processes here, which is why I feel so at home & will be left feeling adrift again if I don't get a positive diagnosis - and I'm anxious because I think that's a significant possibility. I don't think I've ever found a group where I can relate so much with what most of the members are saying than ASD groups, but I'll feel like a faker / hanger-on if I get a negative dx.

    Many people have (rightly) said "It won't matter; you know yourself" which is true, but if I'm told I'm not ASD I'll be wondering if I'm making mountains out of molehills with the difficulties I do have, and inventing ones that I don't have. I'd just like to be able to say in company "I'm leaving now because I have to" and know that there's a good reason for that and I'm being reasonable not selfish and precious.

    I once likened the "Aspie realisation moment" to discovering the user manual for my brain that had been hidden down the back of the sofa since I was born, reading it and realising why I was draining batteries so quickly and the green light never came on properly. I now feel like I have that manual and it seems helpful, but I'm not sure it's for the model of brain that I have. I'd like that certainty reconfirmed!