What next? Processing my diagnostic report.........

Just sharing some thoughts and hoping for some suggestions / thoughts..........

My diagnostic report tells me that I meet the criteria for deficits in social communication and interaction, but when it comes to the other necessary criterion of restricted and repetitive behaviours, I meet only one of the two required subcategories (I meet the "sensory differences" one).

This means I would have a positive diagnosis if I met the criteria for any of a) stereotyped and repetitive behaviours, b) restricted and fixated interests or c) response to routine and change.

I think I can agree with my report that I don't meet these - but I can see them in myself, especially the relief from stress that I get from being absorbed in a hobby, and my dislike of doing things that are outside my routine. But maybe this is normal. It strikes me as difficult to call objectively and I have to trust the expertise of the assessment team here.

I have been referred for an ADOS test, but I really can't see how this will change anything, as the ADOS test focuses on "communication, social interaction, and play (or imaginative use of materials)" - which won't offer anything to modify the call already made on the criteria that I don't meet the threshold for.

I've learned through this process that what matters is that I understand myself and give myself permission to be kind to myself, and the report helps me by stating that I *do* have differences in social behaviours and sensory sensitivity - and to be honest these are the ones that I know cause me stress and having that reflected formally is helpful.

I guess I'm just left wondering what's *actually* different about my brain. But I guess none of us knows this in detail anyway!

But I'm also left feeling a little deflated and not hopeful that the ADOS test - with another wait, travel & day off work, and another wait after that - will help with anything.

There is also the issue of feeling a little like a fraud now, but I guess I can deal with that!

Parents
  • Anyway, I agree with NAS39248, whatever the results you have to accept your self for who you are Slight smile

    We all have varying quantities of different traits, having autistic traits or not is not a all-or-none thing. You may want to look at the Rdos Aspie Quiz https://musingsofanaspie.com/2012/11/20/taking-the-aspie-quiz/ Regardless if you are NT or ASD, everyone will score some NT scores and some ASD scores.

  • Indeed - that's been the main learning for me throughout this process. I wish I had realised decades ago how hugely different people can be and that it's OK to be different - I'm going to celebrate being myself from now on and not worry about societal norms (I stand by my user name for e.g.!).

    Yes I've been to the Aspie quiz many times & even made my sequence of about 12 results into a video (which I've now lost unfortunately and it was a huge effort to make).

    I'm moving on to letting go of labels, and what I really want from this process is to know what areas of myself I can safely "develop" and what areas I need to take care to respect as they currently are; I don't want to repeat the experience of burnout.

    So I'm definitely in a "moving forwards" mood - which is good :-).

Reply
  • Indeed - that's been the main learning for me throughout this process. I wish I had realised decades ago how hugely different people can be and that it's OK to be different - I'm going to celebrate being myself from now on and not worry about societal norms (I stand by my user name for e.g.!).

    Yes I've been to the Aspie quiz many times & even made my sequence of about 12 results into a video (which I've now lost unfortunately and it was a huge effort to make).

    I'm moving on to letting go of labels, and what I really want from this process is to know what areas of myself I can safely "develop" and what areas I need to take care to respect as they currently are; I don't want to repeat the experience of burnout.

    So I'm definitely in a "moving forwards" mood - which is good :-).

Children