Got my report (a surprise as I'm still waiting for ADOS)

The report says pretty much what I was expecting:

  • Evidence of qualitative impairments in social and emotional reciprocity, non verbal communication deficits and difficulties maintaining relationships
  • Insufficient evidence in stereotyped and/or repetitive behaviours or highly restricted and fixated interests

So - on the face of it at this stage - not autistic.

Still will take a while to process but I was already a little ahead of the game I think - i.e. I just need to love myself as I am and not worry about what everyone else thinks.

I'm not sure how the ADOS might or might not change this conclusion. Particularly as I think ADOS is about social imagination ant interaction, so even a "positive" on the ADOS would add to the already ticked box whilst doing nothing to address the un-ticked box?

Still leaves me wondering "what am I?"

To be continued :-)

Parents Reply Children
  • Thanks - yes the conclusions of the report were pretty much as I typed above. I met the criteria for part A of the DSM-V (which is what the report states they use) but only one of the two criteria needed for part B (I meet the sensory criteria but none of the others i.e. Stereotyped or repetitive motor movements....... Insistence on sameness....., Highly restricted, fixated interests). 

    Exactly as you say - it's a matter of interpretation on what repetitive, fixated or restricted. I certainly identify with it but that could be confirmation bias speaking. 

  • I don't know, I had ADOS before the dx, it is quite confusing for you, indeed. Does the report actually states the diagnosis, or is it an intermediary stage?

    The sentence about insufficient evidence could mean that they need to ascertain that at ADOS. It is a tricky one, as for high functioning people it is a matter of interpretation of what repetitive, fixated or restricted is. I know for women they accept that it is about the intensity of an interest, not about how restricted it is.

    You better get advice from some recently diagnosed in your area?