Advice for woman wanting to talk to a professional about diagnosis?

Hi, I'm new here. 

I would just like to ask if anyone has advice on where I could find someone professional to talk to about the likelihood of an autism diagnosis. I have been driving myself crazy for the last 6 months researching about autism and whether I am or am not autistic, and I just keep going round in circles.

I'm worried that I might just be making this all up in my head, so instead of going for a very expensive autism diagnosis straight off I wondered if anyone could recommend someone I could just explore the idea with first.  I live in Scotland, but would be willing to travel or maybe even do an online session if anyone can recommend anyone good.  I'm looking for someone who has good experience of women with autism, as I work very hard to act "normal", and have been quite successful at this.  I think a lot of people would just dismiss me because I can make eye contact (mostly) and conversation.

I just had a very disappointing appointment with a psychiatrist today and I think I really need to talk to someone who knows what they're talking about (when I mentioned autism she said that the thought had crossed her mind while talking to me, but that it wasn't her area of expertise, and that she didn't think that being autistic would explain my recurrent periods of severe depression or my "emotional disregulation" (meltdowns?)  when I think it is a very plausible explanation for both!)

Sorry for rambling but when I started to feel like she wasn't listening to me and just wanted to put me on more drugs I had a mini "emotional disregulation" in her office and ended up crying hysterically for an hour, and now my brain is like jelly so I might not be making sense here.

Many thanks for any advice you can offer!

GuineaPig

  • I don't have specific recommendations, but perhaps the women on this link could advise you

    SWAN – Scottish Women’s Autism Network 

    http://www.autismnetworkscotland.org.uk/swan/

    In relation to your Psychiatrist, it's really unfortunate that she has no competence in ASD and uses this as an excuse to misdiagnose you. The thing that she might be have in mind, Borderline Personality Disorder of is a common misdiagnosis for autistic women, totally unhelpful and a nasty label in addition. So you might see how to block that by insisting that if she has no competencies in autism, she should refer you to someone who has.

  • Hi,

    I have found here https://www.autismresearchcentre.com/arc_tests proper tests for autism, the first one AAA measures your AQ, EQ and your mum's score. For instance, I am waiting for my mum's sheet but without hers, on AQ  I scored 35, on EQ 19 which shows I actually lack social understanding and I show traits of autism.

    I am in the same situation. The educational psychologist I saw 2 weeks ago said I could not be autistic because I make eye contact(and I don't, I'm looking at mouths or nose to everybody beside my kids, my mom and my feiance) and I am ok at abstract reasoning test.

    I don't have money to spend on the expensive diagnosis, and I don't know what to expect from one(is it that test I referred you to? would be actually my first question given the fact that they ask a relative or more of them to be with you?)

    Through time  I learned to go and calm down in the bathroom rather than say what I think to certain people or ask for help . This really impairs with my academic performance now. I don't ask for help and the tutor won't ask me anything, I am feeling like the invisible man when all I want is learn adequate stuff for postgraduate study and do it properly to satisfy my need of everything to be perfect in my project.

    Sorry for my English,is my second language.

  • Most psychiatrists aren't that well acquainted with ASD so I wouldn't be too surprised that they didn't have much knowledge about it.

    Psychologists, speech and occupational therapists are often more involved in ASD diagnosis (with kids it's often a whole team of people, with adults it can vary). The NHS service I got my diagnosis through employ a variety of professionals (I would guess probably with an overseeing psychologist) and the guy that did my assessment was actually an occupational therapist.

    You almost certainly want to look at seeing a psychologist, not a psychiatrist. I would look at the British Psychological Society register here for psychologists in your area, look through to find ones that have experience in autism in adults and then contact them individually to see what they can do and how much experience they have in diagnosing women. As already pointed out, if you're set on going privately almost everywhere will do a preliminary screening before deciding whether you should be assessed further, so you don't usually have to commit to a full expensive assessment right off the bat.

  • Getting an assessment through the NHS is a possibility, but the waiting can be quite a long time in some areas (e.g., 2-3 years). You can look up the NAS directory to see if there are any private services that cost less: https://www.autism.org.uk/directory/browse/cid=80~aid=9.aspx Google can also be useful to look up information. You can also ask your GP if they might have any suggestions. Or call the NAS helpline for advice.

  • Hi, 

    I'm not sure I can be much help but If you are planning on paying for private diagnosis then alot of places offer a "screening"  service that gives you an indication of whether or not you should pursue a full assessment. 

    These vary in price I know that the lorna wing centre starts at £200 it may be worth talking to them before hand to see what they recommend. And at least they are understanding autism in women