Struggling

Hello everyone, 

I have been absent from the forums for some time. I tend to flit in and out like that. 

I was already struggling before I was officially diagnosed with Aspergers. I suffered several traumatic events up till the age of twenty at the hands of my mum and her various partners. I have talked and talked about it with therapists and doctors and a psychologist. 

I don't know whether it's to do with my traumatic experiences or if it is related to my Aspergers but I find being around other people very hard. It could be a mixture of both. I find that I'm uncomfortable and anxious and never know what to say. I get scared that I will offend or upset people, so I tend to stay quiet. 

I get so frustrated with myself because I would love to work. I started a volunteering job two years ago but had to take a break last June because I was diagnosed with Remitting Relapsing MS and I'm scared to go back. 

I have low-level support from a charity that specialises in Autism. I was referred to them last year from Secondary Care. I was offered a support worker but it turned out he was only available to talk me through what having Autism means and about the different ways people communicate and why we need to do so. 

I shared my feelings with the lady who works for the charity about maybe doing a part-time course and she said I should pick one thing to focus on and then try volunteering once my confidence is where it should be. I feel very frustrated because it is not the first time she has suggested taking things slowly but never offers a pathway forward. 

If I go any slower I'll come to a complete standstill. 

I just want to have friends and a job like everybody else. :( 

Thanks for reading, 

Katie

Parents
  • Former Member
    Former Member

    I experience the same feelings in social situations too so would tend to think a lot of it is to do with being autistic. 

    If you're interested in doing a course your local college should be able to offer you an appointment with a careers advisor to talk through your option. You could also meet with their disability adviser to discuss the support you may be able to access.

    I've tried NHS services and charities in the past but didn't find them to be that useful, especially the counselling they were using methods devised for MT brains, rather than providing specialist support for autistics, 

    Have you applied for PIP? I receive this and have found the support I'm able to access privately has been more suited to my needs, 

  • Even though I am interested in doing a course I'm not sure I'd be able to. I receive ESA and am currently in the support group after having the jobcentre pushing me to do courses that I thought were no use to me and it made me ill hence the decision. I would have to ring them and check but ai find the post moves all the time for what they allow. I have discussed the possibility of coming off the support group and moving back onto the work-related but he is worried it will knock me back again as am I. 

    I didn't find counselling useful either. I was undiagnosed at the time. The Psychologist I saw in 2016 was the one to bring up getting assessed for Autism and admitted he didn't specialise in Autism and there were few that do. I did try to find one after I was diagnosed through Secondary Care but they decided I didn't need to see one. 

    What support are you able to access? I have never thought about needing it really. 

Reply
  • Even though I am interested in doing a course I'm not sure I'd be able to. I receive ESA and am currently in the support group after having the jobcentre pushing me to do courses that I thought were no use to me and it made me ill hence the decision. I would have to ring them and check but ai find the post moves all the time for what they allow. I have discussed the possibility of coming off the support group and moving back onto the work-related but he is worried it will knock me back again as am I. 

    I didn't find counselling useful either. I was undiagnosed at the time. The Psychologist I saw in 2016 was the one to bring up getting assessed for Autism and admitted he didn't specialise in Autism and there were few that do. I did try to find one after I was diagnosed through Secondary Care but they decided I didn't need to see one. 

    What support are you able to access? I have never thought about needing it really. 

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