Undiagnosed autism

Hi all

I wonder if anyone has any advice on my situation. I have lived with my husband for 15 years and we have had a very difficult relationship. I am on the autistic spectrum (although not diagnosed) and he frequently refers to this and complains about my autistic behaviour making his life difficult. We are about to embark on our third attempt at couple counselling. On our first visit I explained that I was on the spectrum and that my husband found this difficult and the counsellor said , 'Yes there is definitely autism in the room,' Later on the penny finally dropped- my husband has undiagnosed autism and for inexplicable reasons ( as I frequently work with autistic clients) I have failed to realise it. He has every single symptom of high functioning autism ( although actually he really doesn't function because of his disorganisation and distractibility) My husband cannot accept responsibility for his conduct and is hypersensitive to criticism. He will find it impossible to accept the suggestion that his conduct plays any role in our marital problems. I am fearful of the counsellor suggesting this to him as I know he will take it extremely badly and he is already depressed.

Any advice would be most welcome

Parents
  • I am female, recently diagnosed autistic at the age of 58, married for 10.5 years and together for 12. My husband and I saw a Relate counsellor at the suggestion of the Psychologist who diagnosed me. It was disastrous. She was very disorganised at the start of the meeting, had not seen information we were told to submit via an online portal, and we had to spend the first part of the session filling in forms. All I could think of was the money this was costing (Relate charge £50 per hour) and what a waste of time it was. The counsellor did not have any insight into autism, did not control the meeting sufficiently well, and we had a huge row when we got home that nearly led to us splitting up. We didn't go back. 

    Since then we have seen another couples counsellor. It was better as he has insight imto autism through family members. I am absolutely convinced my husband is autistic too - this is likely as I read somewhere autistic people are 9 times more likely to have an autistic, rather than allistic, partner.  I have tried to talk to my husband about this but he got very upset and clearly does not want to consider the fact that he may be autistic. When I see the counsellor individually this is something I am going to discuss. My husband came to my feedback meeting with the psychologist who diagnosed me and I often wonder if she picked up on his communication traits that I perceive as autistic. 

    My husband's reaction to my diagnosis was quite negative and surly - he said rather grumpily he supposed it was good for me, which I thought suggested it wasn't good for him. My diagnosis has definitely disturbed the balance of our relationship as I am having to review my career. I have always worked incredibly hard so that he does not have to. Now that I realise I need to take things more gently it has put pressure on him to contribute by finding part time work. I am not sure what advice I can give you. I think I might contact the counsellor and explain my concerns to avoid him being identified as possibly being autistic, or held accountable for any issues, in a way that would be unhelpful.

    I actually see the fact that my husband and I are probably both autistic very positively. Even if he does not acknowledge it, by redesigning our lifestyle to be autism friendly and reducing the stress we are under, the future could be good for us. I just need to let go of my need to get my husband to acknowledge the fact that he is autisitic - the denial of something that could bring us closer together upsets me. 

    I do hope things get easier for you and your husband. Marriage is very challenging (this is my second). Reducing stress and tension and opening up communication seems to be the key to us getting along well. It also helps when we have a special interest or project to unite us and give us a common purpose. 

  • Thank you so much Sunflower. this is like reading my own story! I also have a previous marriage (plus twins, now 20 yrs old) and a 14 yr old from this marriage whoi s definitely on the spectrum. I was the breadwinner in both marriages but current husband has rattled around providing neither money or support with the household. At the same time I am hypercritical and cannot let him get away with his foolish and unhelpful behaviour so I nag and attack his self-esteem. He cannot accept any responsibility for his faults so it is all a bit unhappy.

    He has an individual counselling session tomorrow and I took a deep breath and told him that I thought the counsellor may think he is autistic. He rejected this but did say he would consider it if the counsellor brought it up and he wasn't too annoyed so I am holding my breath for tomorrow!

  • Hi there do hope everything goes ok. It's encouraging that your husband is open to the idea of the counsellor bringing up the possibility of him being autistic.

    One of the reasons I became so career focused was that it gave me lots of control. I was very unhappy in my first marriage when I had children and stopped working for a while.

    I find it hard not to be critical of my husband - and instead of addressing things in a respectful, sssertive way, I let my frustration build up until I get upset. All our big rows are about the fact I feel over burdened with responsibility for keeping a roof over our heads. 

    Since my diagnosis, and given my current state of burnout, he is having to do a lot more. I am hypersensitive at the moment so we end up having silly arguments.

    I was paying for something at a till yesterday when he started reaching into the handbag on my shoulder and fishing around for something. It was horribly distracting so I asked him to stop, but he carried on. Later on I asked him why he didn't stop when asked. He said it was because he could not see why what he was doing bothered me!

    I suspect my husband and I will always be a mystery to each other but I hope we can get better at working as a team. We have faced several crises previously and come through them OK, so I hope we can do the same again.

    I think the reason my diagnosis has disturbed my husband is that he recognises how similar we are. I don't have any negative feelings about identifying myself as autistic, on the contrary I'm actually quite pleased about it. For him it is different I think he believes a diagnosis would diminish him in some way. He does not want to tell his parents I am autistic, which is probably significant.

  • Yup! Lots in common apart from our birthsign! 

  • That feeling of having things in common with other people and being less alone is wonderful isn't it! When I joined this forum and found I had so much common ground with other autistic people my formal ASD assessment and diagnosis became far less important to me. Apologies for the delay in replying - things have been busy this week so I have not been checking messages as regularly as I usually do. x + () = aspie hug! 

  • Hi Sunflower

    The more I hear the more I find it extraordinary that anyone could be in an almost identical situation to us! I am totally disrespectful when I am cross and also sarcastic and belittling. However I have had 15 years of completely running the household and coping with his erratic ,disorganised and occasionally callous behaviour. e.g when my daughter from my previous marriage had appendicitis and I was in meltdown he had essays to mark and couldn't bring himself to show any support or affection to me. What has been most difficult is his constant assertion that his behaviour is 'normal' and I have the problem. Thank you for your support-it is so nice to feel less alone x

Reply
  • Hi Sunflower

    The more I hear the more I find it extraordinary that anyone could be in an almost identical situation to us! I am totally disrespectful when I am cross and also sarcastic and belittling. However I have had 15 years of completely running the household and coping with his erratic ,disorganised and occasionally callous behaviour. e.g when my daughter from my previous marriage had appendicitis and I was in meltdown he had essays to mark and couldn't bring himself to show any support or affection to me. What has been most difficult is his constant assertion that his behaviour is 'normal' and I have the problem. Thank you for your support-it is so nice to feel less alone x

Children
  • That feeling of having things in common with other people and being less alone is wonderful isn't it! When I joined this forum and found I had so much common ground with other autistic people my formal ASD assessment and diagnosis became far less important to me. Apologies for the delay in replying - things have been busy this week so I have not been checking messages as regularly as I usually do. x + () = aspie hug!