Managing work, mental health, family and everything else....

Hi, so I’m 26 and was diagnosed as autistic several years ago. 

I’ve always felt pretty isolated. I feel different and don’t fit in anywhere unless I pretend to be another person, even then I struggle to maintain that for long.

I hate my life and I know that sounds a bit dramatic but I do. I am incredibly fortunate in the sense that I am currently financially stable but I don’t feel fulfilled by my life. 

At the moment I work 15 hours in a work placement as well as look after a pony for a few days a week too. I see my parents on a Sunday for a few hours. I don’t really have much in terms of support from my family. Both my parents are seriously ill and my step dad is my mums full time carer. 

I feel pathetic saying that I am unhappy because the fact is I have things in my life that I should be pleased about but the reality feels completely different.

I wake in the morning exhausted from a sleep filled with nightmares and racing thoughts. I eat my breakfast and get dressed whilst trying to fight off the belief that I am disgusting and obese. I cant stop myself from thinking constantly about every potential scenario of the day and really struggle to not be in control.

At work I am drained by all the social interaction and because I am constantly suppressing weird, stupid tics and things. When I’ve finished work I come home and I feel overwhelmed by all the household chores, bills, laundry, gardening and cooking. All I want to do is sleep. Then I am alone. I look out my window and feel even more different and even more isolated. I don’t really have any friends and the ones I do, have their own lives and are busy. 

I moved into independent accommodation in June and since then I have been trying desperately to pretend that I’m managing better than I feel I am. I can go days where I don’t physically speak to anyone at all, crying on and off all day, to suddenly being invited over to someone’s house and I’m so grateful for their company that I almost feel sick and I don’t want to leave even though I am exhausted, so when I do, it breaks me. I sob on my way home and hate myself for being pathetic. 

I started self harming again and when that didn’t help I started drinking to help how I feel. I was hiding how much I was drinking and making it sound like a joke when I was hungover. 

I thought I could manage living independently, have a job and just do everything that being an adult entails but I don’t feel like I can. I stopped asking for help and thought if I just pretended like I was managing then I would. 

Ive been offered a permanent job where I am working and I was massively excited. I thought it would be the answer to how I feel but in reality the position would mean working shifts with no pattern and to me this feels massive. 

I think what I’m trying to somehow ask is, is there anyone else like this? Is this all just because I’m autistic? 

At the moment I don’t know who I am and I’m scared that come January when my work placement finishes I’ll be left even more isolated and feeling even worse about myself. I tried to tell someone today that I’m worried about this but she said I was thinking too far ahead but to me it feels as immediate as the coming weekend. 

I’m not sure what else to say, sorry. I think I would just like someone to say I’m not alone.

Parents
  • You definitely will not be alone. I can't speak from experience of issues like self harming or feeling that low but I do completely understand where you are coming from with regards of feeling pathetic for feeling low with what you have to be happy for. I often feel like this when I'm down and I don't have the sad things that you are coping with.

    You don't need to feel like that (I know me saying that won't stop it though). You obviously have a lot of stresses in your life right now (some of which is very sad) and it's ok to be struggling with it. It's great that you are able to be honest about your feelings.

    I think it's impossible to say whether it is down to your autism. Mental health issues such as depression are very common in people with autism but I think plenty of people without autism would struggle in your position too.

    I understand what you say about worrying what will happen with your placement in the future. I worry very far in advance and sometimes completely irrationally.

    I hope you are getting help with the way you are feeling. If not you really should go and see your gp.

    I hope you feel better and good luck with your placement etc.

Reply
  • You definitely will not be alone. I can't speak from experience of issues like self harming or feeling that low but I do completely understand where you are coming from with regards of feeling pathetic for feeling low with what you have to be happy for. I often feel like this when I'm down and I don't have the sad things that you are coping with.

    You don't need to feel like that (I know me saying that won't stop it though). You obviously have a lot of stresses in your life right now (some of which is very sad) and it's ok to be struggling with it. It's great that you are able to be honest about your feelings.

    I think it's impossible to say whether it is down to your autism. Mental health issues such as depression are very common in people with autism but I think plenty of people without autism would struggle in your position too.

    I understand what you say about worrying what will happen with your placement in the future. I worry very far in advance and sometimes completely irrationally.

    I hope you are getting help with the way you are feeling. If not you really should go and see your gp.

    I hope you feel better and good luck with your placement etc.

Children