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Any support for people with Autism/Aspergers

Bethy

I am a 34 year old woman with Asperger's Syndrome. I have really been struggling living in my own flat with no family support and no friends. I haven't been getting the right care at home. The carers only come round for an hour or two a day. I feel that I need more care during the day, maybe even in a supported living place. I need urgent help as I also have depression and anxiety and had suicidal thoughts. My social worker doesn't listen to me and doesn't always respond. Any help would be much appreciated. 

  • Dear Bethy,

    I’m sorry you are going through such a tough time, it’s good that you’ve let us know what’s happening/how you feel. Many people have similar thoughts when coping with so much and I hope you’re okay.

    If you are unable to cope with the distress or despair, it’s very important to tell someone about your feelings or thoughts of suicide. Call your GP and make an urgent appointment. Your GP can make sure you get appropriate help and support.

    If it’s outside your GP hours call  111 to reach the NHS 111 service:  http://www.nhs.uk/NHSEngland/AboutNHSservices/Emergencyandurgentcareservices/Pages/NHS-111.aspx

    The Samaritans also provide confidential non-judgemental emotional support, 24 hours a day on 116 123, or by email on jo@samaritans.org.

    MIND have information pages on coping with self harm or suicidal feelings based on the experiences of people who’ve been through it that you may find helpful.

    If you need help with an autism related issue, our helpline can be emailed via webform https://www.autism.org.uk/services/helplines/main/questions.aspx or they’re open Monday to Thursday 10am-4pm and Friday 9am-3pm on 0808 800 4104.

    I hope that is of some help.

    Regards,

    Kerri-Mod

  • I'm sorry to hear things are so difficult for you at the moment. Do you have a crisis plan in place for when you're struggling with your mental health? Maybe the local community mental health team could talk to your social worker and explain what help you need? (apologies if you've already tried this)

    Advocacy groups can be a good way for you to get your voice heard in decisions relating to your care. I think some are geared specifically towards helping people with mental health issues. Maybe try an online search for what's available in your area.

    Are you on the Mind group Elefriends? I used to find that when I was isolated and struggling to leave my flat, it really helped to have someone to talk to online and made me feel a bit less alone.

    I hope things get better for you soon.