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No support. At all.

AnneMargaret

I'm fed up with me and my family getting no help or support. I am waiting to see a social worker but we have been asking for support for ages now and keep getting put off. My mum is nearly 62 and it is not fair on her having to cope with me aswell as her other kids and grandkids. I am really struggling tonight but have told no one. Except now yourselves.

Things have been like this for over 7 years. Even though i've been in and out of mental hospital. They just fob you off like everyone else out there.

What are we meant to do? I am struggling to live like this. Everyday is more of a struggle. I panic about what i should eat, when and how often should i was/wash my hair, clean my bunnies, go out, what i should buy, how i should talk. I keep forgetting how to deal with things.

I am probably making no sense at all and as i am currently tearful i am going to shut up. Sorry.

 

Parents

  • I am in a similar situation, except without the support of a family of any kind. I can't go anywhere or do anything on my own and services simply refuse to help. I have been to several doctors and they all end up giving me the same garbage story about not being able to help. They will not refer me to any autism services and the autism services themselves won't help without a referral.

    I have recently found out from one of the autism services that the doctors or the organization who refers an autism patient to them has to fund the support, so I am not surprised. They probably just want to keep their budgets looking nice so they can get some kind of staff bonus at the end of the year or something. It seems like they will only give referrals to people who are in a position to kick up a huge fuss if they don't help, like the wealthy or well-connected families.

    If a person can't cause them any trouble, they will just be left to rot.

    I have also read a lot of other people's stories complaining about these same problems, with the doctors and medical organizations simply not wanting to use up any of their resources to help people with autism.

    It is disgusting. I can only hope in vain that some day these doctors' lives will depend on the help of others and it will simply not be provided. But of course they are all upper/middle class wealthy professionals so they would never be denied any services.

    It feels like the government just creates fake services which appear to promise good healthcare, just as an excuse to tax people more. Most people will never find out that the services are not really provided, they will just see the website of an organisation or a sign somewhere and they will just assume that the government is taking care of people, that's what it will look like, so nobody will complain, they will think their tax money is being used to help those less fortunate but it just isn't.

    Then the public hate the disabled and harrass them in the street because they are blamed as a waste of their hard earned tax money, when it is not even being used to help them in the first place. The disabled are just tabloid scapegoats for government thieves.

Reply

  • I am in a similar situation, except without the support of a family of any kind. I can't go anywhere or do anything on my own and services simply refuse to help. I have been to several doctors and they all end up giving me the same garbage story about not being able to help. They will not refer me to any autism services and the autism services themselves won't help without a referral.

    I have recently found out from one of the autism services that the doctors or the organization who refers an autism patient to them has to fund the support, so I am not surprised. They probably just want to keep their budgets looking nice so they can get some kind of staff bonus at the end of the year or something. It seems like they will only give referrals to people who are in a position to kick up a huge fuss if they don't help, like the wealthy or well-connected families.

    If a person can't cause them any trouble, they will just be left to rot.

    I have also read a lot of other people's stories complaining about these same problems, with the doctors and medical organizations simply not wanting to use up any of their resources to help people with autism.

    It is disgusting. I can only hope in vain that some day these doctors' lives will depend on the help of others and it will simply not be provided. But of course they are all upper/middle class wealthy professionals so they would never be denied any services.

    It feels like the government just creates fake services which appear to promise good healthcare, just as an excuse to tax people more. Most people will never find out that the services are not really provided, they will just see the website of an organisation or a sign somewhere and they will just assume that the government is taking care of people, that's what it will look like, so nobody will complain, they will think their tax money is being used to help those less fortunate but it just isn't.

    Then the public hate the disabled and harrass them in the street because they are blamed as a waste of their hard earned tax money, when it is not even being used to help them in the first place. The disabled are just tabloid scapegoats for government thieves.

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