No support. At all.

... this seems to answer that question " why do people on the spectrum have a high suicide rate?' . If there is no help out there from health service providers it's easy to see the downward spiral.

Leicestershire County Council has shown recent that it wants to cut support and they are a real let down.

I am in a similar situation, except without the support of a family of any kind. I can't go anywhere or do anything on my own and services simply refuse to help. I have been to several doctors and they all end up giving me the same garbage story about not being able to help. They will not refer me to any autism services and the autism services themselves won't help without a referral.

I have recently found out from one of the autism services that the doctors or the organization who refers an autism patient to them has to fund the support, so I am not surprised. They probably just want to keep their budgets looking nice so they can get some kind of staff bonus at the end of the year or something. It seems like they will only give referrals to people who are in a position to kick up a huge fuss if they don't help, like the wealthy or well-connected families.

If a person can't cause them any trouble, they will just be left to rot.

I have also read a lot of other people's stories complaining about these same problems, with the doctors and medical organizations simply not wanting to use up any of their resources to help people with autism.

It is disgusting. I can only hope in vain that some day these doctors' lives will depend on the help of others and it will simply not be provided. But of course they are all upper/middle class wealthy professionals so they would never be denied any services.

It feels like the government just creates fake services which appear to promise good healthcare, just as an excuse to tax people more. Most people will never find out that the services are not really provided, they will just see the website of an organisation or a sign somewhere and they will just assume that the government is taking care of people, that's what it will look like, so nobody will complain, they will think their tax money is being used to help those less fortunate but it just isn't.

Then the public hate the disabled and harrass them in the street because they are blamed as a waste of their hard earned tax money, when it is not even being used to help them in the first place. The disabled are just tabloid scapegoats for government thieves.

I'm hoping this reaches you, just to say hello.  I seem to have lost track of things recently, but I'm still here.

Affection, always,

Richard

Hello all. How are you?

Well i am on a new diet - calorie counted. Going pretty good so far. Enjoying focusing on it, but it's tricky change.

My bunnies appear to be ok with the allergies so far. Difficult finding out what's wrong though.

My birthday on in few weeks so trying to look forward to it.

My Dad is poorly with his eyes. We both wear glasses full time. But Dad's have deteriorated rapidly and he has to see an eye specialist. He is very depressed and it's not good.

How are you?

Anne

Hello Annie x 

(for so you signed yourself last time) and, yes, it is Richard.  I keep forgetting my name has been mentioned at least once since I took on my username.  Apologies for not getting back to you sooner but, as I'm sure you know, the site has been down for a day or two.

Glad to hear Bunty and Pip are in mummy-snuggling mode.  My favourite mode, too, sort of, and there's no picture quite equals, for me, the sight of my two moggies snuggled up together.

Anyway, 'tis Friday and school is over for another week.  Another week or two at most and we'll be 'on holiday' again - though the truth is that I work more unpaid overtime than you could shake a stick at, in term time and out.

And my good lady, my son, the kids I work with are all fine.  Mum's been a little poorly this last week - she has vascular dementia - so I'm waiting to hear how she's getting on.  Saying goodbye to a sixth former after his final exam on Monday and that will be very sad - he's one of the best guys I've ever met, a fine, honourable young man.  And I know we are losing some staff soon - just people moving on - and there are one or two I will miss very much.  It is always the best who leave, it seems.

Briefly going back to your last mail - I don't think the involvement of volunteers would necessarily mean that you couldn't get other kinds of help.  My thought was that it might be a way to meet other people too, and to find out about support groups.

Enough of that for now.Time for me to - yup - get back to work 

warmest best wishes, and an 'x' too,

Richard

Thank you. I will ask about this when i meet her Tuesday thanks.

have you asked your social worker about getting help in for even if it's just for a few hours my dad look after a older woman and i think he went to the  crisis team to get a helper in everyday for a few hours have you tried going to the crisis team for help i think you don't have to pay for the helper so that another rote you could go down ask you social worker about it she will know about thee things.

Hi. I'm really sorry but i've forgotten your name. Is it Richard? Feel awful sorry.

Bunty and Pip seem happy tonight. When i shut them up for night they were snuggled with their sister and mummy. :)

Bless you hope you don't get stressed out by being a little cross.

Glad to hear from you too. :)

I could enquire at volunteer centre but also i see social worker next week and if i get funding i can pay for a PA to help me about and give mum and dad a break. Thank you though i will look into it.

Been out with dad to pub tonight and had quite a nice chat. Feeling a little calmer if nothing else. :)

Annie x

Hello Anne

I am very relieved to hear about Bunty and Pip and I'll keep my fingers crossed for you and for them.

You were very close with 'airborn', it justs wants an 'e' on the end of it, and it's the kind of word loads of people will probably spell wrong.

The idea might be completely useless, but I wonder if you have ever tried contacting your local Council for Voluntary Service?  They look for volunteers for a whole range of things - maybe they could look for a volunteer 'friend' who could help you get out and about without mum and dad always having to be involved?

Your problems don't sound daft - and especially not in a forum like this one.

I've had an okay day but am a bit stressed about a couple of colleagues who keep pressing one of our ASD students to continue working on his English revision, despite the fact that we just recently agreed that he should quit doing it because of the level of stress it is putting on him.

It makes me cross.

But I can't stay cross.

I'm fine, really.  And very glad to hear from you.

Love to you,

Hey.

Bunty and Pip went vets. Both are ok and it seems to be an allergy from something airborn. (I've spelt that wrong haven't I? Feel silly now.) But Pip has bad lungs, her breathing is very loud and vet isn't sure what's wrong but it's nothing too serious. Got to keep an eye on them all.

Not sure how i exactly feel today. A little lost maybe. I have group tomorrow but not sure if i can get there or not and Mum definitely can't go with me so i can't catch buses which means I would have to ask Dad nicely if he can take me and i meet a fellow service user before group so i don't have to go in alone. Sounds a bit daft but i struggle sometimes.

How is everyone else on here anyway?

Hello treasure,

I am glad you are going to see your doctor and that a social worker has been in touch.  The GP may not be able to do much on account of not being 'trained in mental health as such', but surely to heaven they can give you a referral?  I will keep my fingers crossed.

Bunny situation sounds a bit worrying.  I'm going to have so many fingers crossed that typing a post like this could get a bit difficult.  And I hope you'll hear from your sister soon.

AnneMargaret said:

I am sort of still "chipper" just feeling like nobody is helping. It seems to all be about children but there are adults out there struggling to live independently. Me being one of them. (I can't go anywhere alone for starters.)

And finally i feel my parents deserve support. I can be very up and down which is also part of my PD but my parents have never even seen a professional or anyone who could help or support them. And i feel sorry for them. They are both in their 60s.

So i am just a moaner i guess. Sorry.

I know that feeling of nobody being there very well.  I was already 35 when my hugely handicapped daughter was born, and for most of those 35 years I had 'been there' for others.  After Jenny was born you mostly couldn't see them for dust, and the most supportive (as always) were those who were also struggling.

A support group for mum and dad sounds like a good idea and I wish you success with it.

You have friends here who care.  I know I do.  So 'moan' away. (a) you're entitled and (b) that's what we're here for.

Love to you,

It's funny you have said that as i have been trying to get my mum to join a carer's group at one of our libraries. I will have to try and encourage her as she is worrying that people will think her caring job is easy cos i "only have autism".

Aww don't worry about me i always muddle through but ahve had some scary thoughts and experiences lately. Thank you for all your kind words of support all of you. I do appreciate it. Just a rough patch.

Anne.

AnneMargaret said:

Hi.

I have Dr's Thursday. But keep being told there's only so much they can do as they aren't trained in mental health as such.

Social worker got in touch and i see them next Tuesday.

Yes i still have my 13 bunnies. Although some are poorly and have to go vets soon as they keep coughing and sneezing Hope it's nothing serious.

My sister has gone back to Australia which has sort of topped everything off for me.

I am sort of still "chipper" just feeling like nobody is helping. It seems to all be about children but there are adults out there struggling to live independently. Me being one of them. (I can't go anywhere alone for starters.)

And finally i feel my parents deserve support. I can be very up and down which is also part of my PD but my parents have never even seen a professional or anyone who could help or support them. And i feel sorry for them. They are both in their 60s.

So i am just a moaner i guess. Sorry.

I wonder If your parent's could join a carers association so they could get some support? My friend is carer and they claim it's been helpfull.

Hi Anne,

So glad to see you post here again!

I for one was starting to worry about you.

Anyway, just want to respond to this part of your post:

AnneMargaret said:

I am sort of still "chipper" just feeling like nobody is helping. It seems to all be about children but there are adults out there struggling to live independently. Me being one of them. (I can't go anywhere alone for starters.)

And finally i feel my parents deserve support. I can be very up and down which is also part of my PD but my parents have never even seen a professional or anyone who could help or support them. And i feel sorry for them. They are both in their 60s.

I know this doesn't really help in any way, but just wanted you to know you're not the only one in that boat!

My parents are also in their 60s and are my primary carers - my Mum in particular does a huge amount for me, and I know the stress can't be doing anything for her health, and it worries me almost daily.

This isn't helped by the fact that they live over 100 miles away from me, but Social Services just don't seem to care - in fact we've been told in effect that as long as my Mum is there to support me, it's very unlikely that they (Social Services) will provide me with any support - but, of course, she doesn't feel like she can't just stop her support, and though I have felt like saying she should I'm not sure I could cope if I did.

Anyway, just know that are some people here that think about you, and though we don't know you, do care about you, and wish you to stay strong and healthy.

Hi.

I have Dr's Thursday. But keep being told there's only so much they can do as they aren't trained in mental health as such.

Social worker got in touch and i see them next Tuesday.

Yes i still have my 13 bunnies. Although some are poorly and have to go vets soon as they keep coughing and sneezing :( Hope it's nothing serious.

My sister has gone back to Australia which has sort of topped everything off for me. :(

I am sort of still "chipper" just feeling like nobody is helping. It seems to all be about children but there are adults out there struggling to live independently. Me being one of them. (I can't go anywhere alone for starters.)

And finally i feel my parents deserve support. I can be very up and down which is also part of my PD but my parents have never even seen a professional or anyone who could help or support them. And i feel sorry for them. They are both in their 60s.

So i am just a moaner i guess. Sorry.

Hey AnneMargaret

I thought you had become quite chipper recently, and I'm sorry things are getting you so down again.  You're still going out for the occasional drink with dad?  Still got 13 bunnies?  I hope so.

I hate that there is so little I can do.  Maybe you could tell us a bit more about what has got you so upset just at the moment?  And if it is the 'support' thing altogether, then you have the sympathy of everyone who has ever needed the state to 'get its finger out'.  Go with the advice you've had, try, try, try to keep your chin up AND don't forget that there are some of us out here to whom you are very, very important.

Hi Anne

I think that you may need to go to your GP and explain everything to him/her.  Hopefully they will help but you may have to go back more than once to get your point across to them

Colincat

Kick off is the way social services are kin useless

call the crises team you need help tomorrow get a appointment to the dr and tell them you need help now.