Published on 12, July, 2020
My 3 year old son has just been diagnosed with ASD. We completed a questionnaire with the paediatrician, they confirmed diagnosis and gave us some leaflets to read at home. Now I feel like I have been thrown into this world that I have little understanding about and worried about my sons future. I wasn’t able to ask the Dr any questions because they were running behind. I’m hoping to get some help/support from other people on here.
My son has an expressive and receptive language delay. He is currently non verbal and will pull you to what he wants or bring it to you (the remote control if he wants the tv on ect) he can say and read numbers and letters and enjoys nursery rhymes. It can be difficult to get his attention and he can lash out if he doesnt want to do something (pinch and slap) he likes to engage with children but as his communication is limited he finds it difficult he also doesn’t understand the concept of sharing and his play skills are delayed. He doesn’t have any routine/food/sleep issues.
for all the parents and carers out there with children with ASD does it get better? How will I know if he is going to be high or low functioning? He is on the waiting list for speech therapy, is there anything I can do to help him progress?
I know everyone with ASD is different. It would just be good to hear some of your experiences and share any advice with me.
I have spent the last couple of days crying and worrying my son will never develop. I have decided it’s pointless crying and being upset and I’m putting all my efforts into helping him. Any advice on where to go next would be really helpful!
Hi I remember when my son was diagnosed i remember a sense of relief but also cried for weeks on end I remember thinking this will never change how much I love him because people now say he has autism I thought to myself for days where do I go who do I speak to luckily my mother had gone through it all with my sister and I thought but surely it’s going to be different we are in a time when autism seems more heard of but it was daunting the medical appointments the people coming in treating me like knew nothing and we are 12 years on and I still at times feel lost! now I know this isn’t much of a positive reply but I guess what I am trying to say is always make your voice heard don’t let anyone tell you they know your child because they deal with autism within their job autism isn’t textbook it’s real life I know it’s hard but I have cried everytime my son did one little thing that I knew was difficult for him it made me think if he can do this I can do this but never be afraid to have a good cry or rant because hey we need it at times it’s funny but you realise how strong you really can be :) xxxx