Published on 12, July, 2020
Is there anyone that can help me? I feel so alone and I feel no one is understanding my difficulties, I’m feeling low and helpless.
I have Aspergers, I also have depression, anxiety and fibromyalgia, two years ago after a long tiring battle the tribunal granted me enhanced rate daily living and standard rate motility, last year I was asked to complete a routine review, I had my face to face assessment in February which was awful the lady was so rude, the questions didn’t even make sense for my conditions, she was confusing me and I felt like she was trying to catch me out.
Two weeks ago I got my response I’ve lost all my mobility and I’ve been reduced to standard daily living, I’m so confused all my symptoms are the same the only thing that has changed is my increased medication, I take the following 187.5 mg vensir 45mg mirtazapine 1200mg gapapentin.
Ive asked for a reconsideration but I have to send more evidence, how can I do that I’ve sent all the evidence I have. I went to my gp Thursday to ask for his help, but the response I got made me feel even more useless , he said my sister has Aspergers and she has it worse than you! and he said just because you have Aspergers you can still lead a normal life, I felt so alone, like a fraud, I have no one to talk too, I have no one that understands me, please any help or support would be appreciated, I’ve tried phoning my local autism charity but they are always busy, I won’t leave a voicemail as I don’t answer my phone! So this is kinda my last resort.
Thank u for reply :)
I'm not sure where you're based but your local council may have a Welfare Rights service or similar. It can be worth looking on the council website. With mine you can email them and, so long as you tell them your deadline for responding to the DWP, they'll make sure they get a support worker to help you before then. I've had great help from my local service for several issues with regard to benefits and debts. Good luck, I hope you can get the support you need.Here's an advice page with links to other help which I hope will be of use to you:https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-appeals
Definitely not a dig at you. I was very sorry that someone was rude to you and that you did get upset, my comments were about the poster whose comments were moderated.
I don’t resent anyone! Everyone copes in different ways! This is one of my struggles I can’t work out if ur comment is a dig or ur being nice ?!
I suspect when some people struggle alone they may resent those who do seem to have it easier than they do. Stick around, the UK is full of people in the same boat
think i'm just tired of battling the PIP system this is my second battle with them! last time was hard enough with citizens advice support and that was before my formal diagnosis of Asperger's.
thank u for being so kind tho.
No need to get upset.
Most people here are polite and helpful but occasionally we get someone being rude and abusive.
The way I understand PIP is that you have to meet a clear list of criteria to qualify.
And at every point you need to give an example where (and how) you struggle. And get independent proof from other people that what you say is true.
Good help can be obtained from local citizens advice bureau or benefits and advice offices.
Thank u for reply, i understand now! if i knew people would be mean i wouldn't off bothered asking! all i wanted was some help and advice and i stupidly thought i'd get some on here as we all suffer with similar medical issues, oh well i'll just have to plod on, by myself x
By edited, I mean that the moderators on this forum deleted part of one of the replies to your original post because it broke the rules by being a bit tackless and disrespectful To you.
I've been simply asking for advice and support, I feel like ur having a slight pop at me! to claim pip you DON'T have to justify your ability to work its not JSA or ESA! not that I need to justify myself but I always worked up until 5 yrs ago until my depression, anxiety, juggling three children and my 1st marriage break down knocked my for six! also my husband works full time so i'm not trying to claim everything and live of tax payers money!
content editied ? i'm new to this what does that mean ?
Before this post was censored/edited. There was some straight talking, harsh advice.
I am about to start a new job next week.
I wonder how long I will last before they fire me for having autistic traits/behaviour?
I was also advised by a specialist debt advisor to apply for PIP, rather than look for paid employment.
Just like some people fake stage 4 cancer? Just like some people get so stressed during their interviews they keel over with heart attacks!
Hello,
Some posts have been edited from this thread due to community rule 4 being broken.
Be nice to one another and enjoy chatting with others. We encourage conversation and respectful debate; however, insulting posts or comments making personal jibes will not be tolerated.
Please be respectful of the rules.
If you are concerned or upset by anything on the online community, please contact: communitymanager@nas.org.uk immediately.
Thank you.
Nicky-Mod
Well I have. It would put a stop to all the mud-slinging of claimants at a stroke. But then the marvellously enlightened government in the UK would have to find another scapegoat wouldn't they.
Hi NAS37129
You may like to have a look at our website which includes many topics on benefits that you may find useful:
PIP: http://www.autism.org.uk/pip
Appeals and Reconsiderations: http://www.autism.org.uk/about/benefits-care/appeals.aspx
Making a complaint: http://www.autism.org.uk/about/benefits-care/letters-and-complaints.aspx
You may like to contact our Autism Helpline team who can give general autism information and advice, but please be aware that they are unable to offer specialist advice on benefits.
To contact the Helpline directly you may wish to call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday, 9am to 3pm). Please note the Helpline team are experiencing a high volume of calls so it could take you a few attempts to get through to an adviser.
Hope this helps,
Have you heard about the Universal Basic Income?
[Content edited by moderator] you have to have some sort of history with your GP and how your condition affects your ability to look for work or function on a day-to-day basis. I somewhat support the current system that they use to assess Pip claimants, though being unable to apply myself due to my less demanding condition of aspergers and didn't fulfill their criteria, I wish there weren't so many overturned appeals, some people can easily fake the condition [Content edited].
Search on here for other posts on PIP. There is a facebook group / website which I have recommended in other posts after originally being recommended it by another user on here.
This is not an area I know much about, however, you could try looking at these websites:https://www.benefitsandwork.co.uk/https://www.citizensadvice.org.uk/https://www.disabilityrightsuk.org/http://www.autism.org.uk/get-involved/about-us/contact-us.aspx (you can use the online enquiry form rather than ringing)
I wish I could be of more help. Hopefully, more knowledgable people will post replies.