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New late diagnosis

NewuserJS031126

Hi,

I am Jaime and I was diagnosed with Autism last week, I am 59, and I’m in a spin and it’s all very new to me. 

long story short, I thought I was just weird etc, and ended up being diagnosed last week, I don’t really know the terminology so apologising in advance if I get it wrong, I got some high scores so that must be a plus for something! I don’t really understand what they have said though and some things are wrong.

Not really sure what to do now to be honest, when I was told I checked the credentials of the person giving it, very highly qualified and sure she hadn’t made a mistake. It felt like millions of jigsaw pieces that are my life all clicked together and everything made sense. However, next day it was crash and burn, I couldn’t think, speak, sleep. I’ve recovered a bit but I’m really confused and I just don’t know what I do next, so here I am, you are on my list of resources so any comments welcome and thank you for listening.

Parents

  • I was diagnosed last week at 52 and understand the angry, frustrated stuff. I had been asking for an assessment for over 10 years and was variably told that it was menopause, depression and even 'the fashionable thing" by the NHS. I feel angry that they tried to plan me off on antidepressants and I am thinking that I have been misdiagnosed with depression for years and pumped with pills when it was just burnout and feeling overwhelmed. I was in tears after my last appointment about it at how I felt they were trying to dismiss my concerns. At least I finally got the referral though.

    I am also concerned at how people will respond to my late diagnosis.

    After fighting for the diagnosis, I don't know how to react to it. It has helped me understand things better and why I am the way I am. I just feel "lost".

  • in reply to Welsh1

    Hello, 

    I’m 53 and finally got the official diagnosis on the 17th October! 

    I completely relate to what you have said. I have spent my whole life feeling lost and so alone.  I have had very mixed responses from the people in my life.  My father (who I live with) has completely disregarded the outcome of the assessment and questioned the review.  This causes me so must pain.

    You hope so much for some sort of clarity, understanding and accommodation once it has been confirmed but with so much media misinformation out there, it feels almost impossible. And if you are like me and struggle to vocalise anything that is important to you, how do we move on?

    sorry, didn’t intend to rant.

    you are not alone though. X

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  • in reply to Welsh1

    Hello, 

    I’m 53 and finally got the official diagnosis on the 17th October! 

    I completely relate to what you have said. I have spent my whole life feeling lost and so alone.  I have had very mixed responses from the people in my life.  My father (who I live with) has completely disregarded the outcome of the assessment and questioned the review.  This causes me so must pain.

    You hope so much for some sort of clarity, understanding and accommodation once it has been confirmed but with so much media misinformation out there, it feels almost impossible. And if you are like me and struggle to vocalise anything that is important to you, how do we move on?

    sorry, didn’t intend to rant.

    you are not alone though. X

Children
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