Not sure whether it's worth pursuing an autism assessment

I'm a 30-year-old woman. For as long as I can remember, I've felt different/off/as if I'm living life on hard mode in some ways and easy mode in other ways. Recently, I've started wondering about autism. So much seems to fit (e.g., I seem to have a very overactive sensory system – I have misophonia, misokinesia, lexical-gustatory synaesthesia, visual snow, sensitivity to food textures), but the social piece gives me pause.

As an adult, I'm good at socialising insofar as people tend to like me and find me warm, kind, and socially competent (albeit a bit eccentric). I often overshare and talk too much about myself, but I know that I'm doing it and try to curb it. I often find socialising draining, especially with people I don't know well, and I find the process of texting and writing emails tiring. However, I have 10–15 friends (a few of whom are close friends) and enjoy socialising with them.

As a child (age 12 and younger), I was less socially successful. I spent many lunchtimes reading rather than interacting with other kids (my teachers actually expressed concern about this to my mother), often preferred adult company, and was consistently described as shy, quiet, and reserved. I don't recall ever struggling to understand social rules; as far as I can remember, I've always found people easy to read, never struggled with eye contact, never struggled with taking things too literally or not understanding jokes, etc. Rather, I had different interests and didn't feel motivated to join in with the other kids (and sometimes the other kids made me anxious). I had a best friend and did 'normal' things with her – sleepovers, watching films, hanging out at the park, etc. When I got to secondary school, I found the environment overwhelming and scary, and I got the sense that my peers thought I was odd. I had a very, very active imagination: I used to spend hours walking in circles on the schoolyard/around my parents' living room or walking laps around the housing estate my parents lived on, listening to music and imagining scenarios. (I still do that now, actually – if I'm not actively engaged in something that usurps my attention, I'm daydreaming.) I was also pretty clever: by the age of 12, I'd written at two or three novella-length pieces of creative writing.

I'm not sure whether the social piece rules out autism or whether it's worth my exploring this further.

  • Hi and welcome to the community!

    We're not allowed to offer medical advice to each other here, but you might find it helpful to compare the traits that you've noticed with those detailed in these NAS resources, which explain the main signs / symptoms / characteristics of autism. They might also help you to identity and note down any additional things that you recognise in yourself:

    NAS - What is autism?

    NAS - Signs that a child or adult may be autistic

    This article might also be helpful in respect of the social aspects that you mentioned:

    NAS - Autistic women and girls

    It includes, for example:

    "Autistic characteristics in women and girls may differ from those of other autistic people. They might seem to have fewer social difficulties than autistic men and boys, but this could be because they are more likely to 'mask' their autistic traits (though the stress of doing so can result in anxiety and overwhelm)"

    If you'd like to learn more about getting assessed, this article is a good place to start:

    NAS - How to request an autism assessment

    It's from the NAS's diagnosis hub, which covers all stages of the process.

    For those who live in England, it also includes information about requesting an assessment via Right to Choose (which enables access to private providers who might have shorter waiting lists than the NHS, but with your referral and assessment still fully funded by the NHS).

    The NAS articles include links to some screening questionnaires that you can complete, to get a better idea of whether your suspicions are correct. But you might prefer to use the website below for this. It enables them to be completed online (with scores calculated for you), saved as PDFs and - if the results support your suspicions and you decide to seek a formal diagnosis - printed off to take with you to the GP.

    The AQ-10 or AQ-50 seem to be the most frequently used / required by GPs in support of NHS referrals. (RAADS-R might also be helpful, but recent research has thrown doubt on its clinical validity as a self-report screening tool).

    Embrace Autism - screening tests