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Can't be assessed without an informant

Kool_kat

Ive waited months for an assessment. Finally had it booked for today. Explained on the call weeks ago I dont have an informant - few friends and not a great family relationship. I was told it would be fine.

The woman has just refused to do the assessment cos I dont have anyone else on the call. Said unless I can find someone who knew me as a child I can't be assessed. 

What do I do??? I provided some school reports but she said that's not enough. 

Parents

  • I wonder whether the format of the assessment is relevant.

    I suspect from reading this that I was diagnosed under the 'Disco' regime:

    https://www.autism.org.uk/what-we-do/diagnostic-service/the-disco

    "Where possible, information concerning the person's history in infancy and childhood should be collected from an informant who has known the person from birth. However, when for an adult, there is no informant available to give an early history, the items of the schedule can be completed for current skills, deficits and untypical behaviour"

    "As mentioned above sometimes no informant is available. When this is the case the clinician has to obtain as much information as possible concerning the details of current skills and pattern of behaviour of the person. This type of dimensional approach to clinical description is far more useful for prescribing how to help each person than is assigning a diagnostic category. The dimensional approach is fundamental to The DISCO in contrast to other diagnostic schedules."

    The diagnostic tools for the UK are listed here:

    https://www.autism.org.uk/advice-and-guidance/diagnosis/assessment-and-diagnosis/criteria-and-tools-used-in-an-autism-assessment

    Diagnostic tools for adults who do not have a learning disability

    • Adult Asperger Assessment (AAA) – includes the Autism-Spectrum Quotient (AQ) and the Empathy Quotient (EQ)
    • Autism Diagnostic Interview – Revised (ADI-R)
    • Autism Diagnostic Observation Schedule – Generic (ADOS-G)
    • Asperger Syndrome Diagnostic Interview (ASDI)
    • Ritvo Autism Asperger Diagnostic Scale – Revised (RAADS-R)
    • Diagnostic Interview for Social and Communication Disorders (DISCO).
Reply

  • I wonder whether the format of the assessment is relevant.

    I suspect from reading this that I was diagnosed under the 'Disco' regime:

    https://www.autism.org.uk/what-we-do/diagnostic-service/the-disco

    "Where possible, information concerning the person's history in infancy and childhood should be collected from an informant who has known the person from birth. However, when for an adult, there is no informant available to give an early history, the items of the schedule can be completed for current skills, deficits and untypical behaviour"

    "As mentioned above sometimes no informant is available. When this is the case the clinician has to obtain as much information as possible concerning the details of current skills and pattern of behaviour of the person. This type of dimensional approach to clinical description is far more useful for prescribing how to help each person than is assigning a diagnostic category. The dimensional approach is fundamental to The DISCO in contrast to other diagnostic schedules."

    The diagnostic tools for the UK are listed here:

    https://www.autism.org.uk/advice-and-guidance/diagnosis/assessment-and-diagnosis/criteria-and-tools-used-in-an-autism-assessment

    Diagnostic tools for adults who do not have a learning disability

    • Adult Asperger Assessment (AAA) – includes the Autism-Spectrum Quotient (AQ) and the Empathy Quotient (EQ)
    • Autism Diagnostic Interview – Revised (ADI-R)
    • Autism Diagnostic Observation Schedule – Generic (ADOS-G)
    • Asperger Syndrome Diagnostic Interview (ASDI)
    • Ritvo Autism Asperger Diagnostic Scale – Revised (RAADS-R)
    • Diagnostic Interview for Social and Communication Disorders (DISCO).
Children
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