Can't be assessed without an informant

Ive waited months for an assessment. Finally had it booked for today. Explained on the call weeks ago I dont have an informant - few friends and not a great family relationship. I was told it would be fine.

The woman has just refused to do the assessment cos I dont have anyone else on the call. Said unless I can find someone who knew me as a child I can't be assessed. 

What do I do??? I provided some school reports but she said that's not enough. 

Parents Reply Children
  • All this makes it extremely hard on the person being assessed, especially if you are autistic, it is hard to communicate the distress caused by being messed around to an assessor.

    Absolutely.

    It can mean people not pursuing a diagnosis because it's painfully difficult to do.

  • It seems there is a big range in the people doing the assessments and their understanding of the guidelines/what their company policies are.  Some are understanding that it isn't literal or always possible, and if you can discuss things enough yourself, they are satisfied. Some seem to refuse unless you have filled out their specific form to the letter. I've never heard of requiring someone on the actual call before.

    All this makes it extremely hard on the person being assessed, especially if you are autistic, it is hard to communicate the distress caused by being messed around to an assessor.

    I'm very sorry  , this must have been very upsetting, especially when they said it would be fine. I would contact the place again, and explain what happened and ask for an explaination, as you shouldn't have been told two things. I think there are places you can go, but you need the staff arranging it and the person doing it to be on the same page as to what they accept.