Hi, I have written before about my ASD assessment on here. I have been going back and forth with them for a while now but they are still saying it is not ASD. It's very complicated but basically they told me I have a diagnosis of EUPD on my NHS records from when I was 16 (I have never been told this, never saw a psychiatrist about this it help for it, so have no idea where it has come from. I'm 37 now.) And it seems because that is on my records they are saying it's that.
I tried to ask on several occasions if they can explain why certain traits I have that can't be explained by this do not indicate ASD. Every time they gave vague answers that didn't actually answer my question. My husband has been to every follow up with me and agrees it is very odd they won't answer the questions and any seem to give an answer. (For reference my husband works with people with ASD/ADHD l/various disabilities and I have two Psychology degrees so we know enough about the subject to know when we are being fobbed off.)
At first they tried to lean heavily on it being ADHD which I also have a referall for, but obviously will be waiting a long time. And then when I asked them to reconsider they seem to have dropped that completely and saying EUPD. They also had wrote many things wrong in my initial report, that I either didn't say, or just completely in the wrong context.
In between meetings with them after I found out about the old diagnosis, I researched every personality disorder. Went through the traits etc to try and see if it matched mine. My husband helped me with this as I was wanted to know if I have any so I can get the right help. None of them matched anywhere near as close as ASD (as there is a lot of crossover traits). So I tried to explain to them but they just still didn't really give me a reason as to why they still think that.
The way it has been handled just doesn't sit right, and so I looked up reviews for the consultancy and it seems many other people have had negative experiences too. I wish I had known when I asked for a referral about right to chose as I would have carefully looked for a more reputable place. This one spent half the evaluation doing the test which seems meant for children (frogs book, play with some toys in front of me etc. and speaking to me being incredibly patronising).
I don't know what to do because I don't want to "chase" a diagnosis if I don't have it, but I don't feel like my questions have been appropriately answered and they seem very much they just don't want to help. I just want to get the right diagnosis so I can move on/ get the help I need.
I made an appointment with my doctor after finding out about the old EUPD diagnosis to ask about it. He said that it is so old they don't have access to anything other than literally a sentence saying I was diagnosed with it. I asked what I do now and he said that it would have to be a new referral if it were looked into and that I have to wait for the ASD team to report it back to the doctors so I can start that because there's no other evidence.
So it seems like I'm having to go round in circles because of a mystery diagnosis. I wanted to ask would I be within my rights to ask for a new referral for ASD? Would they allow it? What else can I do? Any help would be great, thank you