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Help needed desperately

NAS64600

Hi I had an ASD assessment a month ago. I was previously worried about my assessment as I did not have any real "proof" from childhood as I have no family members or friends to ask. In the assessment I made it clear that I was worried as any neurodivergence has never even been brought up by doctors or schools etc due to having childhood trauma on my files. I was worried as any concern I try to raise is ignored and this is what is focused on. It seems the assessor took that idea and ran with it too. 

I have two psychology degrees (one is a msc), my husband has worked with ASD clients for the past 10 years and I have a nephew diagnosed with ASD and a son that has ADHD and is almost through his own ASD assessment so feel I am fairly right in my feelings that I have asd as does my husband feel so too. I have the lives experience and the horrible impact it has had on my life (I'm 37). However I have obviously masked a lot which has caused be a lot of mental pain. 

I received the assessment report today which said I did not meet the threshold. I was completely shocked. It has triggered major panic attacks and what I would consider to meltdowns all day. I am completely distraught and (as I often get) suicidal now.

The worst part is that whilst reading through it my husband and I found at least 10 things that were misquoted or not true at all (neither of us said them) and a lot of relevant (dsm5 criteria) information/proof missing. It also states that whilst I have a lot of traits that do meet all the criteria's, she has said they are down to childhood trauma. Even though it was barely touched on and she does not even have the facts of what it actually was (her words in the report). She also said in one part of I have a diagnosed personality disorder, which I don't have so I don't understand why she would put that. I am absolutely shattered by it and want to gie up. 

I just want to know is there anything I can do to contest it? Surely they can't just write false reports about someone and then discharge you (which is what she has done)? She has said I can set up a feedback meeting which me and my husband intend to do, but will there be any point?

I feel like reporting them for unprofessionalism due to the innacurate reporting etc. I am just lucky that I have a very supportive husband who has been helping me calm down all day. I hate to think if this happened to someone else without that support, what would happen. 

I am very desperate for advice from anyone who had similar and if they were able to get a diagnosis after this?

I also had the assessment that sees to be aimed at kids rather than adults with the reading a book, tell a story etc stuff which just didn't seem like a valid way to assess an adult who has learnt to mask.

Parents

  • Was a a private assessment or xarried out by the NHS? I suffered childhood trauma, but realised recently that my repetitive behavious like stimming, rocking, involuntary grunting sounds and facial grimacing are related to autism. I have always done these things but never atributed them to autism. Im saying this to check that you didnt overlook any "behaviours" that you have that you dont realise that you have, and just put them diwn to just being you? Its just that sometimes maybe we miss things.

    I would seek a second opinion. X

  • in reply to Tulip52

    Hi yes I am the same. I have those too, but she didn't asky about them. And the ones I do have (which she even said she noticed in the report) she seems to say are anxiety from trauma. The whole thing seems very vague and doesn't really correlate with other things she has written in the report. And things my husband said, she completely got wrong. Would I have to start the whole process again or is there a way to contest it so that they re look at it? Thank you 

  • in reply to NAS64600

    Im suprised that she didnt ask about reoetative behaviours. 

    Would you want the same person to re assess you or have a different person assess you? 

    You didnt say if it was a private assessment? I ask this, because i wonder if some medical proffesionals (mainly NHS),  avoid giving diagnosis for autism? 

    Did she ask about your senses, smells, textures, noise, music etc?

  • in reply to NAS64600

    I am so sorry you have been treated like this , i have similar issues with diagnosis because they have decided i have cptsd and anxiety and depression , in order to get any hep with the ptsd i had to prove it wasn’t my brain tumour (inactive) causing it . I now know i am in for a fight again to get a diagnosis in 4 years when i might have made it the top of the list . I am now very doubtful i will get any diagnosis . (I’m 54)

  • in reply to NAS64600

    I know exactly how you feel. I have been through the same for myself and for my brother. I become obsessed with having an outcome and that causes me anxiety. Sometimes i have to let things go for now until i feel strong enough. Its almost like needing a closure, its right or its wrong. 

    I wonder if you wrote or emailes all your concerns and sent it, you would feel better. You then have a paper trail and you should get a response. Maybe then you would feel a little better. 

    Childhood trauma and ASD often go hand in hand due to the very fact that there is autism present. 

    My brother went for a private assessment at aged 60, was formally diagnosed. When i asked him, if he felt relief, he replied, you will never know how much. 

    People with autism are being failed, and we need to raise awareness of this. I hope you can start to feel better soon x

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  • in reply to NAS64600

    I know exactly how you feel. I have been through the same for myself and for my brother. I become obsessed with having an outcome and that causes me anxiety. Sometimes i have to let things go for now until i feel strong enough. Its almost like needing a closure, its right or its wrong. 

    I wonder if you wrote or emailes all your concerns and sent it, you would feel better. You then have a paper trail and you should get a response. Maybe then you would feel a little better. 

    Childhood trauma and ASD often go hand in hand due to the very fact that there is autism present. 

    My brother went for a private assessment at aged 60, was formally diagnosed. When i asked him, if he felt relief, he replied, you will never know how much. 

    People with autism are being failed, and we need to raise awareness of this. I hope you can start to feel better soon x

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