I’m exhausted and awaiting a diagnosis

Upon being told by multiple professionals that I may have some type of autism I began looking into it and if I believe it is true. I used to just think I had severe anxiety and got triggered over things others found odd, for example I moved house and for the first 4-5 months had to was my hands after I touched anything I thought was ‘unsafe’ to touch, which resulted in my hands cracking, but it was the only way I wouldn’t panic.

Now that I and my family strongly believe the test results for autism will come back positive after extensive research for the past 4 months have realised how much it affects me.

I am so tired constantly, I am in a never ending cycle of anxiety, depression, obsession over the smallest things, however I also worry about my behaviour when I feel this way. I get irritable and upset easily and therefore when I communicate come off as harsh and angry even though it isn’t how I feel, just how I express myself, this regularly results in arguments or distance from close people around me, which then causes the cycle of worry. I don’t think the people around me take into account how I feel and see things differently to them even though they are aware of this potential diagnosis. I feel so different, I’m tired, I just want to know how others feel and if anyone knows how to cope.

  • To help you with your anxiety, the following books contain some good advice:

    Asperger Syndrome and Anxiety - A Guide to Successful Stress Management - Nick Dubin (2009)
    ISBN 9781843108955

    An Aspie's Guide to Overcoming Anxiety - Attwood, Tony, Evans, Craig R., Lesko, Anita (2015)
    eISBN 9781784501198

    I don’t think the people around me take into account how I fee

    Oh yes, this is so common. The heart of the matter is that most people either just don't care or think that there isn't actually anything wrong with you and you are just being a drama queen - they rarely understand the nature and impact of autism on how we commnicate and feel.

    I found the only way to deal with this is to learn to stop caring about what inconsequential people think and eductate those who are consequential to us as best we can.

    A good starting point is to understand autism well outselves, hence the following book recommendation;

    Understanding Autism For Dummies - Stephen Shore, Linda G. Rastelli, Temple Grandin (2006)
    ISBN 0764525476

  • Thankyou for this, we didn’t go private but I may consider it as it may help my support in my upcoming education in a new space along with stressful tests and other things along with the support for my diagnoses anxiety. And I agree that this site has helped me a lot as I was looking at the community part of it and feeling like many others understood how I felt, my friend recommended it as she got diagnosed a few years ago and it has really helped her. 

  • Hello Gracie, you are certaily exibiting some classic autism indicators, but to be sure it is this and not one of the other conditions which share some symptoms with autism I though recomment taking an online test:

    https://psychcentral.com/quizzes/autism-test

    This should give you a decent indication if it is worth focusing on autism as the issue or not.

    The next steps would be to get assessed - you can do it on the NHS but wait times are over 3 years in most places or you can ask your GP for a "right to choose" in which you get to go via a private assessment instead. They don't like advertising this as it costs them a lot more money although wait times are still up to 6 months from what I hear on here.

    You can go privately - I've seen prices of £500-2,000 from people on here but I had only 2 weeks wait to get mine so it was worth it or me.

    Post diagnosis you may feel quite adrift and there is little or no support available on the NHS - you should ideally budget for a therapist with experience of treating autists which start from £50/hour - expect at least a dozen sessions spread over many months as a rough gauge of a quick process.

    This site is possibly the single best support respource out there with a lot of experienced autists who can offer advice and opinions or simply support.