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Your experience of getting a diagnosis

Ramblingrose

Hello

I’m new to the forums and just wondered about the assessment route everyone’s gone through.  I’m aged 64 and struggled for most of my life with health issues relating to work stress, anxiety, fatigue and digestive problems.  After watching Susan Hendrickx video presentation and doing the AQ50 and scoring highly, I realised that I am very likely autistic.  I spoke to my GP who sent me more tests and agreed that the source of my health problems is very likely to be this due to my high scores. I am also reading Susan Hendrickx book for Women with Autism and I’ve had so many lightbulb moments I’m sure this is the case!

I am now on the NHS waiting list for formal assessment and diagnosis however in this part of the world the waiting time is 4 years.  I was told by my GP that to get privately assessed it would be a fee of £1500 approximately…I just wondered how members of this forum were diagnosed? How long did you wait if it was NHS and if you had a private clinical assessment a ballpark figure of the fee’s.  I’m not really sure which way go but a 4 year wait seems an incredibly long time for an appointment.  Any feedback on experiences of the system would be much appreciated. Many thanks. 

Parents

  • Hi,

    I have just been through the NHS route, it took just over a year. They contacted me very shortly after 12 months to ask if I would be willing to go via another company that does the same assessments the NHS does. I asked if this would add time on to the waiting times and they told me it would make it quicker. It was clinical partners that assessed me. I had a questionnaire and 2 online meetings, one on my own and one with my husband. I also had my family send information on my childhood. I thought they seemed quite good, although I knew it was autism and asked specifically to be tested for this, they seemed to be testing me for adhd and possibly more. At the end of my assessments she did say I definitely have symptoms of autism or adhd but they would need to discuss the results to see if I need the criteria. I got my autism diagnosis the other day and they said they are sending me recommendations. I am unsure if NHS do this too, but just sharing what I know of the current process.

    Best of luck,

    Debbie

Reply

  • Hi,

    I have just been through the NHS route, it took just over a year. They contacted me very shortly after 12 months to ask if I would be willing to go via another company that does the same assessments the NHS does. I asked if this would add time on to the waiting times and they told me it would make it quicker. It was clinical partners that assessed me. I had a questionnaire and 2 online meetings, one on my own and one with my husband. I also had my family send information on my childhood. I thought they seemed quite good, although I knew it was autism and asked specifically to be tested for this, they seemed to be testing me for adhd and possibly more. At the end of my assessments she did say I definitely have symptoms of autism or adhd but they would need to discuss the results to see if I need the criteria. I got my autism diagnosis the other day and they said they are sending me recommendations. I am unsure if NHS do this too, but just sharing what I know of the current process.

    Best of luck,

    Debbie

Children
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