Daughter anxiety++, suspected ASD, moving to secondary

Hi everyone,

New to the forum and looking for advice about my daughter moving to secondary in Sept. She is currently at primary school mornings only due to high anxiety and phobia, and even that is a struggle now. We have a TAC planned and she has been under CAHMS since 2010 due to her phobia and anxiety, with very little input apart from parenting advice. She hasn't been seen by an ed psych yet. When in school she is achieving her levels in the national curriculum, and presents as if everything is fine. She says she feels as if she is in a nightmare and feels physically ill.

I have only just started to suspect she has aspergers, although have had my concerns about her behaviour since she was little. I will be raising this with CAHMS at our meeting later this month. Although I'm prepared to be thought of as an over anxious parent, it all makes sense now to me.

I'm just wondering how/if it is at all possible to support her needs in a very large secondary school? I think they have a quiet learning zone - going to check it all out after easter. I don't expect her to be able to attend full time - I just wondered if there are any wise words out there?

Thanks  Smile

Parents
  • My 14 year old son was diagnosed with ASD last summer and his difficulties weren't obvious until he started at high school. He too can only attend school in the mornings due to high anxiety and sensory processing problems, he now has 1 to 1 support and still finds it difficult to go into class, doing most of his lessons in a quiet learning base.

    Does you daughter have support in school? The primary school should be planning for your daughter's transition to secondary school with the new school and it should be started now, things like visits to familiarise her with the school, introducing her to teachers and support staff. I think you should make an appointment with the SENCO of the secondary school and see what is being done, the fact that your daughter doesn't have a firm ASD diagnosis should make no difference so don't let them fob you off.

    Hopefully, when you see CAMHS again they will be able to support you in dealing with the school. I would also keep nagging away at the Ed Psychologist as they are the ones who should advise the school.

    I had to take the legal route to get the help my son needs and yes you will be treated as an over anxious parent but stay strong and don't give up until your daughter has the right help in place. My son still has days when he can't go into school as it overwhelms him, they don't understand this but it's tough and always remember know one knows your child better than you do.

    I would get a notebook and jot things down as you think of them that you want to ask, go to all meetings prepared.

    I wish you both lots of luck and best wishes.

Reply
  • My 14 year old son was diagnosed with ASD last summer and his difficulties weren't obvious until he started at high school. He too can only attend school in the mornings due to high anxiety and sensory processing problems, he now has 1 to 1 support and still finds it difficult to go into class, doing most of his lessons in a quiet learning base.

    Does you daughter have support in school? The primary school should be planning for your daughter's transition to secondary school with the new school and it should be started now, things like visits to familiarise her with the school, introducing her to teachers and support staff. I think you should make an appointment with the SENCO of the secondary school and see what is being done, the fact that your daughter doesn't have a firm ASD diagnosis should make no difference so don't let them fob you off.

    Hopefully, when you see CAMHS again they will be able to support you in dealing with the school. I would also keep nagging away at the Ed Psychologist as they are the ones who should advise the school.

    I had to take the legal route to get the help my son needs and yes you will be treated as an over anxious parent but stay strong and don't give up until your daughter has the right help in place. My son still has days when he can't go into school as it overwhelms him, they don't understand this but it's tough and always remember know one knows your child better than you do.

    I would get a notebook and jot things down as you think of them that you want to ask, go to all meetings prepared.

    I wish you both lots of luck and best wishes.

Children
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