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Unofficially diagnosed no support

Gemcat

Hi I'm new here so hope I'm posting right

my son is 5 and has been having counselling for 2 years. His specialist has told me that he is on the spectrum but that she will not officially diagnose him as he is doing well academically. ( he's in reception but working at a level higher than year 1)

I haven't been given any support he has meltdowns at home though at school he seems to have shut downs when he will completely close him self down and block out the world.

when he has a meltdown he hits me strangles me punches and growls and often takes it out on his siblings

he is hypersensitive and doesn't like loud noises. I am waiting for is ear defenders to arrive as he doesnt like unexpected loud noises. When we are out he refuses to go into the toilets as he doesn't like the sound of the hand dryers.

 I'm not sure what I'm supposed to do I feel like I'm constantly fighting for him to receive some kind of support and help. I'm not sure what to do next I feel alone do I fight for a diagnosis or is there any support I can get without one

any advice support or links would be brilliant thank you in advance

Parents

  • Get another specialist. 

    There is no reason the specialist should not diagnose him. Do  not accept their reasoning and seek another opinion. I'm actually kind of disgusted from what you've told me. Because ten or 15 years down the line - he'd be seeking a diagnosis anyway. Because he'll wonder why his thought process is different, why something so basic won't come simply to him... 

    "Believes he is on Spectrum'  but won't give him a diagnosis? I'm surprisingly angry on you and your son's behalf right now. Fight for the diagnosis, GemCat.  Demand reasons as to why they won't formally diagnose him? And what does good academics have to do with things? It'll mean nothing when social interaction or sensitivities impact his learning experience. 

    Please fight for your son. I really hope the 'Specialist' has good, solid meanings and (no offence) hope that perhaps they mean that THEY can't give a formal diagnosis, and help you find a specialist who can.  I really would hope that there was a misunderstanding :(

    Best wishes.

Reply

  • Get another specialist. 

    There is no reason the specialist should not diagnose him. Do  not accept their reasoning and seek another opinion. I'm actually kind of disgusted from what you've told me. Because ten or 15 years down the line - he'd be seeking a diagnosis anyway. Because he'll wonder why his thought process is different, why something so basic won't come simply to him... 

    "Believes he is on Spectrum'  but won't give him a diagnosis? I'm surprisingly angry on you and your son's behalf right now. Fight for the diagnosis, GemCat.  Demand reasons as to why they won't formally diagnose him? And what does good academics have to do with things? It'll mean nothing when social interaction or sensitivities impact his learning experience. 

    Please fight for your son. I really hope the 'Specialist' has good, solid meanings and (no offence) hope that perhaps they mean that THEY can't give a formal diagnosis, and help you find a specialist who can.  I really would hope that there was a misunderstanding :(

    Best wishes.

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