Husband needs help with Autism/ADD

Hi

My 6 year old son was recently diagnosed with Aspergers and ADD. The ADD diagnosis was exptected as my husband was diagnosed with it about 15 years ago. The Aspergers was a bit of a surprise, but actually makes sense now we understand more about it. He's doing really well with a lot of extra support and his school has been amazing. It became obvious after our son's diagnosis that my husband also has Aspergers (he's waiting to be diagnosed). This has been a relief in many ways as ADD didn't really address all of his issues. He's now in his late 40s though and he's really struggling and I don't know how to help him anymore. He's a musican who can't focus well enough to make money from composing despite having contracts with big licencing libraries. He doesn't have any recent experience doing any other work. He suffers from really bad insomnia, can't tolerate any background noise and struggles to take in information. I've been working part time since our son was 2 as my health was starting to suffer (I basically do everything) so our financial situation is really dire. We manage on my part-time salary and small amount of child tax credit and housing benefit.

My questions are: is there any long-term counselling available for him? He had some talk therapy on the NHS but it was only for a few sessions and he's basically back at square one now it's finished.

Are there any organisations which help people find work who have my husband's problems? Are there any good options for working from home so that I can supplement my part-time income but still be home a couple of days a week to provide support?

We can't manage like this for much longer but I'm completely out of ideas so any suggestions would be appreciated.

Thanks

Avril

  • Thanks for all of the info you provided, I really appreciate it. I need to spend some time going through everything to figure out what to do next. 

  • Former Member
    Former Member

    Talking therapies are prescribed in courses of a few sessions. If he still needs them, and they are benefiting him, then he should go back to his doctor for a repeat prescription. This is just the same as for other conditions that require lengthy interventions.

    Having undiagnosed autism can lead to tremendous stress, anxiety etc and these conditions need to be treated until they are under control. The underlying autism will remain after the other issues are tackled but he should look forward to a significantly different life in the future.

    I would recommend a book www.amazon.co.uk/.../1606236342 I read this beook before I got diagnosed (at age 56). it was useful to me as it showed practical things that I could do to help myself. Other books are available and this one may not be to your husband's taste but I think it is important to understand that a diagnosis can be the start of learning about how live a better life.

  • Hi Avex70,

    I have listed some resources below which may be of use to you:

    The Autism Directory

    You can search for services in your area on the Autism Services Directory:

    www.autismdirectory.org.uk This includes services such as: support groups, social groups, advocacy, befriending, residential settings, outreach and respite.

    I have listed the Welfare Rights Service below which may be able to offer advice on supplementing income:

    Welfare Rights

    They're available to offer you advice and information on what benefits you may be entitled to, general advice on completing claim forms, and what to do if you think a decision is wrong and appeal to a tribunal.

    To use our Welfare Rights Service, you'll need to book a telephone appointment, which you can do by email: welfare.rights@nas.org.uk. Please include your age (or the age of the person in question), details of your benefits query, and tell us where in the UK you live. We aim to reply within 10 working days.

     You could also book an appointment by calling our Autism Helpline 0808 800 4104 (Monday-Thursday 10am-4pm, Friday 9am-3pm) or by filling in our contact form: http://www.autism.org.uk/services/helplines/welfare-rights/contact.aspx

    Mind a mental health charity may also be a useful place to search for local counselling services: http://www.mind.org.uk/about-us/local-minds/

    I hope you have found this information helpful.

    Regena-Mod