Autism awareness in the seventies

I have a son who was born in the late sixties, and I think that some of his behaviour was similar to what I have been reading recently about autism.  Autism has been mentioned in the media in recent years and I am struggling to understand what it is.

In the sixties, seventies, and eighties we had no internet, and we had not heard of anything like it.  Other parents at school only spoke of all the usual childhood illnesses and there were no friends or family with anything different.

Our little boy could be very difficult, often contrary, and would sulk and shut himself away.  We tried to cheer him up when he was unhappy, and he was hard work.  We always went to school parents evenings, and took him to the Doctor when we were concerned about him.  In his early teens he seemed depressed and often anxious and the Doctor referred him to a therapist.  The first meeting was all of us together, and then he attended on his own.  This was only available up to the age of 18.

After that time he attended Doctors and Counsellors, but no-one ever suggested to us that he may have a named condition, and we always thought that it must be something that he would grow out of.

Unfortunately, his problems seem to have worsened over the years.  He has not been in contact with us for many years, but we have heard that he has been saying dreadful things.  We have learned that he has convinced himself that we are to blame for all his problems, and that he is constantly spreading many cruel stories about us.

As parents, we tried everything from encouragement, praise, trying very hard not to upset him, to trying a firmer approach at times and trying to ignore his negative thoughts. We encouraged him to be positive, and reminded him of all his pluses e.g. how handsome he was; how intelligent; how he had a family that loved him etc.  We bought music cds specifically for relaxation and destressing, and we all discussed regularly whether there was anything else we could do.  We just thought that we were dealing with a child who was going to take longer than most to find his way in life, and to be happy.

The Counsellor that he was seeing as an adult advised us that there was nothing more we could do, and that we were already doing everything that we could. We just kept hoping that soon he would be less anxious and depressed.

Are there other parents of older grown up autistic children who have had similar experiences?  Our son may not even have autism, but something must be making him the way he is.  We have been retired for several years and not in the best of health but we still try to understand.

Parents
  • Hi Sonsmum

    I am autistic and I was born in the fifties.

    To all intents and purposes, autism did not 'exist' then.  Of course it did, anyone who was born before the nineties who is autistic now, was autistic at the time they were born.  It appears to have been 'recognised' only in some medical journals as a rare condition, so there was no real diagnosis procedure in those days.

    Low functioning autism was thought of as being 'backward' or mentally handicapped.  High functioning autism was thought of as being bad behaviour, slow or eccentric, or a combination of all of them.

    I was frequently punished at school for being 'naughty'.  This was mainly due to not understanding social cues, for fidgeting, apparently when being talked to.  I also had what were called severe 'temper tantrums' which again were treated in the normal way of the time - punishment.  High functioning Autism was cured by punishment, and for punishment read canings and other physical punishment which would be considered abuse these days.  It didn't really work, but it did probably cause behaviour to be adapted into something which I think of as 'putting on an act', which had its downside in causing a lot of exhaustion, stress and anxiety which I suffer from frequently.  I still feel myself 'acting' to try to appear normal, it doesn't really work because others still consider me as strange and odd in a lot of the ways I think.

    Since being diagnosed (only three months ago I may add, at the age of 62) I now embrace my autism.  I feel I that in most circumstances I do not have to 'act' out a part, and others should accept me for what I am.  I don't feel I need to make excuses for not liking certain food, for being on my own or for solving problems my own way. 

    I am 'negative' big time to other people.  But this is something which I embrace happily.  It is not being 'negative' that gives me anxiety and depression.  It is others who try to fit me into boxes that I don't belong that does that.  Being 'negative' is part of my way of solving problems, my way of seeing if things can be improved.  Being negative can be a very positive thing.  Saying 'dreadful' things often comes with an autism meltdown, I know I have said things which I don't mean, and in reality I have little control over this aspect.  I think this is the way the mind works, trying to make sense out of a very confusing world especially when there is a great deal of sensory overload, and often perhaps the 'sense' that is made does not make sense later on.  I do realise after I have recovered from my meltdown that I have said some things that I sholdn't have, and it is just one way of coming to terms with a situation - others might be leaving the scene and going into a quiet place, going quiet and stimming - in my case this might be making what others think of as strange movements or making strange noises, I do try to control the more eccentric of these by doing them somewhere quiet.

    In my late teens after suffering what would be seen today as a severe autistic meltdown I was referred to a psychiatrist, but this of course did not really get to the heart of the problem.  I was just treated for severe depression and anxiety, which has regularly blighted my life ever since  It took many, many years (over 25) before I got a job, not due to the fact I was incapable, but because I was misunderstood. 

    I can understand your anquish about not being part of your son's life.  And I think it is going to be very difficult but not impossible.  You must understand that your son is behaving in a rational manner in his mind.  And autism, if your son is autistic, is nothing for him to be ashamed of or others to be ashamed of on his behalf.  Try to meet him write him a letter or email him, perhaps seeing him with someone else who he knows with him in the first instances.  And accept him for what he is and what he always will be. Listen to what he has to say even if it does sound hurtful - autistic people can be very brutal their words.  There are some very good downloadable leaflets on the Autism West Midlands website which you may find useful, I have put a link here  The information has much for adults on the spectrum.  You might also try making an appointment with a local autism support group to explain your situation and see what advice they can offer about how to communicate with your son.

    You might want to do an AQ test by proxy if you cannot get him to do one.  Just answer the questions as if you were him and do it honestly.  This may give you some indidcation as to whether he may be autistic - it is not a diagnosis, but an indicator.

Reply
  • Hi Sonsmum

    I am autistic and I was born in the fifties.

    To all intents and purposes, autism did not 'exist' then.  Of course it did, anyone who was born before the nineties who is autistic now, was autistic at the time they were born.  It appears to have been 'recognised' only in some medical journals as a rare condition, so there was no real diagnosis procedure in those days.

    Low functioning autism was thought of as being 'backward' or mentally handicapped.  High functioning autism was thought of as being bad behaviour, slow or eccentric, or a combination of all of them.

    I was frequently punished at school for being 'naughty'.  This was mainly due to not understanding social cues, for fidgeting, apparently when being talked to.  I also had what were called severe 'temper tantrums' which again were treated in the normal way of the time - punishment.  High functioning Autism was cured by punishment, and for punishment read canings and other physical punishment which would be considered abuse these days.  It didn't really work, but it did probably cause behaviour to be adapted into something which I think of as 'putting on an act', which had its downside in causing a lot of exhaustion, stress and anxiety which I suffer from frequently.  I still feel myself 'acting' to try to appear normal, it doesn't really work because others still consider me as strange and odd in a lot of the ways I think.

    Since being diagnosed (only three months ago I may add, at the age of 62) I now embrace my autism.  I feel I that in most circumstances I do not have to 'act' out a part, and others should accept me for what I am.  I don't feel I need to make excuses for not liking certain food, for being on my own or for solving problems my own way. 

    I am 'negative' big time to other people.  But this is something which I embrace happily.  It is not being 'negative' that gives me anxiety and depression.  It is others who try to fit me into boxes that I don't belong that does that.  Being 'negative' is part of my way of solving problems, my way of seeing if things can be improved.  Being negative can be a very positive thing.  Saying 'dreadful' things often comes with an autism meltdown, I know I have said things which I don't mean, and in reality I have little control over this aspect.  I think this is the way the mind works, trying to make sense out of a very confusing world especially when there is a great deal of sensory overload, and often perhaps the 'sense' that is made does not make sense later on.  I do realise after I have recovered from my meltdown that I have said some things that I sholdn't have, and it is just one way of coming to terms with a situation - others might be leaving the scene and going into a quiet place, going quiet and stimming - in my case this might be making what others think of as strange movements or making strange noises, I do try to control the more eccentric of these by doing them somewhere quiet.

    In my late teens after suffering what would be seen today as a severe autistic meltdown I was referred to a psychiatrist, but this of course did not really get to the heart of the problem.  I was just treated for severe depression and anxiety, which has regularly blighted my life ever since  It took many, many years (over 25) before I got a job, not due to the fact I was incapable, but because I was misunderstood. 

    I can understand your anquish about not being part of your son's life.  And I think it is going to be very difficult but not impossible.  You must understand that your son is behaving in a rational manner in his mind.  And autism, if your son is autistic, is nothing for him to be ashamed of or others to be ashamed of on his behalf.  Try to meet him write him a letter or email him, perhaps seeing him with someone else who he knows with him in the first instances.  And accept him for what he is and what he always will be. Listen to what he has to say even if it does sound hurtful - autistic people can be very brutal their words.  There are some very good downloadable leaflets on the Autism West Midlands website which you may find useful, I have put a link here  The information has much for adults on the spectrum.  You might also try making an appointment with a local autism support group to explain your situation and see what advice they can offer about how to communicate with your son.

    You might want to do an AQ test by proxy if you cannot get him to do one.  Just answer the questions as if you were him and do it honestly.  This may give you some indidcation as to whether he may be autistic - it is not a diagnosis, but an indicator.

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