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reversing a diagnosis

shopgirl

Hi.

Has anyone ever looked to reverse a diagnosis or felt that maybe the original diagnosis wasnt quite right?

My son was diagnosed at 4 (hes almost 7 now) and to put it in simple terms he seems to be growing out of his Autism. We know its not possible for this to actually happen but he cant possibly have developed such impressive coping mechanisms despite having a lot of support. 

I have spoken to his paediatrician who said we could discuss a reversal but suggested we wait until his next appointment to see how things progress between then.

Its quite perplxing as I certainly agreed with the diagnosis at the time but now Im not so sure. Hes still got some sensory issues but his progress in other areas has been amazing. Im pretty certain hed not get that diagnosis now.

Id be interested to hear others thoughts and experiences that may be similar.

  • thank you everyone for your comments. Ill bear them in mind. 

  • hes very young as well, how will he cope when he changes school or anyone changes that may come along.

    i would leave it and just go back for referrals or follow up with the paediatrician when needed.

    saying that there are very few appointments and it tooks years to get a diagnosis in the first place nevermind any social services support so i would hold onto whatever you managed to get and keep talking to them about any changes that crop up as the child gets older.

  • Former Member
    Former Member

    Diagnosis of autism is not an exact science so errors are made.

    However, it is quite possible that the behaviour may have changed and he now appears well adjusted but that the underlying autism is still there. Autism is mainly invisible but the distress or behavioural issues that arise if an autistic person is not happy are much more obvious. If he is happy and settled and doesn't have a problem then that is good but it may not mean that he does not have autism.

    The autism diagnosis can be entirely private and there is no duty to disclose this to anyone unless there is an actual need to have him dealt with differently or with special care and attention. You can put the diagnosis away and "save it for a rainy day" that may never come.

  • I managed to get a diagnosis reversed the other way, but that was because the first assessment was pretty poor in how it was done.