diet

I know the feeling!!!! We have no medical support/advice either. Due to her Crohn's we knew as parents that we had to change her diet for her wellbeing, we bought a lot of books and did some research on the web before starting. We found it very daunting 2 years ago when there was no support but knowing that things had to change and we would have to do it without guidance. I would suggest that you browse the web and see what diet best suits your little one. Hope this Helps.

hi

just wondered how much support you get and advice about your daughters diet i have thought of following this route but i am a bit afraid as there is no one local to get advice and support from i have spoken to the nhs dietcian but she has no experience with autism and the gf/cf diet and does not support it. Frightened i might do some damage to my son as his diet is limited already.

Hi, We follow the SCD  (Specific Carbs Diet) diet with our little girl as she has Crohn's Disease, it's hard work as all food has to be prepared from home (bread, muffins, etc..) but is well worth it, not just for her bowels but also having a happy little girl that is not in constant pain!! We got her tested for food allergies (Privately as there was a 8 month waiting list with the NHS) -she has over 50 allergies which we exclude from her diet. 

thank you for the information will look into it i have brought up the subject with a few of the professionals and they all say there is no evidence to support this and so will not give me any support on this issue. But i will look on the sites you have recommended just wondering if there are other parents who do diets and in what way does it help?

thanks so much for your advice

Hi Scoobydoo,

Your son is in pain so the right thing to do is turn to the medical profession. However as he cannot talk about his pain any progress is liable to be slow as they try to guess what is wrong.

In the meantime there is a lot that you can do.

I am not a doctor but if your child has a bowel or gut problem then the first thing I would look at is what you are putting into it.

The NAS has some information on diets and supplements here,

http://www.autism.org.uk/living-with-autism/approaches-therapies-and-interventions/diet-and-supplements/diet-and-vitamins-therapeutic-approaches.aspx

All children are different, some are born with a food intolerance and some develop them during their childhood. They can cause a lot of pain and be detrimental to behaviour.

For any parent exploring the world of dietary interventions I recomend that you:

 Become well informed on the subject.

Be thorough, eliminate all traces of each food type in turn.

If you see no improvement with one diet then then let your child have that food type again and move on to the next diet so that you can establish exactly what your child is intolerant to.

I would also suggest you explore this website for more information,

http://www.fabresearch.org/view_item.aspx?item_id=3&closed1=true

Good luck

thanks my son does eat plenty of fruit and drinks alot as well just feel the problem is not being addressed properly by the professionals thanks again

sorry i can't make a huge contribution here but my 2 cents would be to suggest to avoid much egg whch makes the waste harder and include plenty of runny stuff to soften things up as well as plenty of rich fruits like dates and prunes to keep things moving