help

Hi there

I can totally sympathise, am relatively new to the forum but finding my way around. My 4.5 year old daughter is due to be diagnosed (hopefully with something I can work with and learn about rather than just 'we don't know yet' which is all we have had for the past two years) at the end of this month and also has epilepsy (diagnosed Aug 2011).

I am told you go through a grieving process when your child is diagnosed with something like ASD - denial, sadness, anger and acceptance. Well I too am at the anger stage now - blaming everything and everyone (including myself), doing the 'it's not fair, why us?' routine. I am taking it out on my husband the whole time and both my kids (short tempered etc). We had just about come to terms with the epilepsy and blamed all her delays and behavours on that, and then she started school and they pulled us up on her delays and learning disabilities saying it wasn't just epilepsy it was 'something else' but they couldn't pinpoint what.

I am constantly trying to find a reason for why this has happened to my baby girl, trying to cope with us not going to be a 'normal' family, working out how my youngest will learn to deal with his sister being 'different' as well, thinking of all the things I had imagined for her as she grew up that she may now never do/experience. It is doing my head in - I am hoping once I get a final diagnosis I can use it to research and learn more about whatever it is so I can help her as much as I can and find othe likeminded parents out there going through the same thing. That's why I am on here too...trying to find answers and support.

xxx

Hi there

I can totally sympathise, am relatively new to the forum but finding my way around. My 4.5 year old daughter is due to be diagnosed (hopefully with something I can work with and learn about rather than just 'we don't know yet' which is all we have had for the past two years) at the end of this month and also has epilepsy (diagnosed Aug 2011).

I am told you go through a grieving process when your child is diagnosed with something like ASD - denial, sadness, anger and acceptance. Well I too am at the anger stage now - blaming everything and everyone (including myself), doing the 'it's not fair, why us?' routine. I am taking it out on my husband the whole time and both my kids (short tempered etc). We had just about come to terms with the epilepsy and blamed all her delays and behavours on that, and then she started school and they pulled us up on her delays and learning disabilities saying it wasn't just epilepsy it was 'something else' but they couldn't pinpoint what.

I am constantly trying to find a reason for why this has happened to my baby girl, trying to cope with us not going to be a 'normal' family, working out how my youngest will learn to deal with his sister being 'different' as well, thinking of all the things I had imagined for her as she grew up that she may now never do/experience. It is doing my head in - I am hoping once I get a final diagnosis I can use it to research and learn more about whatever it is so I can help her as much as I can and find othe likeminded parents out there going through the same thing. That's why I am on here too...trying to find answers and support.

xxx