Really struggling

My son is 9 and was diagnosed with Aspergers Syndrome when he was 7.

He is achieving academically and masks his anxieties at school. However he finds the school environment incredibly stressful and melts down once home.

Things have come to a head since starting Year 5 and he's started refusing to go to school and I've literally had to drag him in, on a few occasions he's run straight back out the cloakroom, luckily only got as far as me in the playground and I've had to take him back in.

At home the violence has ramped up and he's also been running out the house, he has no regards to safety when he does this and will run across roads without looking.

They have daily scores where each child puts a number of how they're feeling. 10 being the happiest. He regularly puts 1 or 2, never higher than a 5 all term.

Once in school they say he's "fine" ie he causes them no bother. 

We've had a meeting to discuss things with the senco and sen ta. We've now got a few things in place such as being dropped off and picked up from the school office, having a mp3 player to drown out the noise of the other children and being able to work outside the classroom if needed. I've been told though that he can't do that forever and has to get used to being in the classroom environment.

They say the Ed Psych won't see him as he's academically achieving and it "doesn't effect his education" likewise they won't get the Inclusion Support people in. I've been told in no uncertain terms that we've no chance of getting an EHCP.

We're waiting for a Cahms appointment.

Has anyone any advice please?

My belief is that he needs to be in a school with very small classes where they are tailored to his needs. My fear is how he will cope in secondary school as they're so much bigger and I feel he'll just not manage at all.

Parents
  • Speak to IPSEA. ASD is SEN in law so an EHC Assessment should be carried out. It's got nothing to do with academic progress - that comes into whether a plan is needed. Your son''s SEN is Social & Emotional - read the SEN COP and see the 4 areas of need. Match your son's needs to the 4 areas. Get out all of the reports you have from school or other professionals and look for indications of stress: lack of cooperatio, hitting people, running away, damage to property etc. Keep notes and a diary of all problems at home - consider filming. List out all of the stress related behaviour and then highlight that SSD puts your son at high risk of serious mental health problems so support is required before things deteriorate any further. Type up your notes and copy all reports then attach to the sample letter filled out with a summary of your evidence. Submit to the LA

    I don't know how successful this will be but it's the line I intend to take. If all of us are deterred by being told "too able for help" then no one applies, so the LAs can say no service is required- so nothing is provided. We should all apply so we can't be ignored. I don't think its ok that we are all left to deal with the aftermath of lack of support:(

    IPSEA told me I should expect to appeal at every stage and to keep in touch with their helpline. Good luck and I hope you get the help your son needs 

Reply
  • Speak to IPSEA. ASD is SEN in law so an EHC Assessment should be carried out. It's got nothing to do with academic progress - that comes into whether a plan is needed. Your son''s SEN is Social & Emotional - read the SEN COP and see the 4 areas of need. Match your son's needs to the 4 areas. Get out all of the reports you have from school or other professionals and look for indications of stress: lack of cooperatio, hitting people, running away, damage to property etc. Keep notes and a diary of all problems at home - consider filming. List out all of the stress related behaviour and then highlight that SSD puts your son at high risk of serious mental health problems so support is required before things deteriorate any further. Type up your notes and copy all reports then attach to the sample letter filled out with a summary of your evidence. Submit to the LA

    I don't know how successful this will be but it's the line I intend to take. If all of us are deterred by being told "too able for help" then no one applies, so the LAs can say no service is required- so nothing is provided. We should all apply so we can't be ignored. I don't think its ok that we are all left to deal with the aftermath of lack of support:(

    IPSEA told me I should expect to appeal at every stage and to keep in touch with their helpline. Good luck and I hope you get the help your son needs 

Children
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