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Difficulties moving from mainstream to Specialist school

CharlyArly

Hi, i'm new to this so please bare with me as i've never posted on a forum before but i'm getting a bit fed up and need a bit of advice.

My son is 8 and was diagnosed nearly 2 years ago.  He got his EHCP last year and we are now coming up to his 1 year review.  He is in mainstream school at the moment and up until he started in year 4 he was coping pretty well.  He is not toilet trained but his TA was assisting him with changing himself twice a day and we were making good progress in getting him sit on the loo without being scared and I really thought things were getting better.  He was also showing lots of improvement in his general learning and his reading and writing were improving.

However, since starting in year 4 things have gone completely backwards.  He is refusing to change himself at school thus holding in a days worth of urine until he gets home where he completely soaks himself.  He won't co operate with basic tasks at school.  His comprehension has taken a tumble and his emotions are all over the place.   He has developed more habits than ever before such as licking his hands until they are red raw and his tantrums have intensified.  He is displaying tantrum behaviour in school whereas before he would leave that until he was home.  He is starting to realise he is different to his peers and is losing friends.  In general my once happy boy is now very unhappy and because he has so much difficulty expressing and controlling his emotions I am at a loss.  I have tried every techique and piece of advice that I have been given all to no avail.

I have decided that he needs to go to a specialist school that will secure his future until he is 16 at least.  He needs consistancy and he needs to be in a place where he feels he will belong.  School is becoming far to structured and ridged for him and he is not coping at all.  His school agrees with all of this and believes he will not cope for much longer in mainstream.

I have decided on a school I want him to go to but I had an email from the education department at my council today stating there is not place for Harry and wont be until 2017?!  This is too long to wait.  I'm so scared of what all this is doing to him and how quickly he is deteriorating that I just want to do the best for him.

What do I do next? Has anyone experienced this before? Can he go on a waiting list? My council are useless and are telling me nothing nor are they offering any advice.  I'm so lost. I've been crying most of the day and i don't know where to turn next. 

Thanks in advance and sorry for the long post.

Parents

  • hi,our son is 16 and was basically thrown out of his mainstream high school as they couldnt cope,didnt understand autism or anything that goes with it,,he is aspergers with very high anxiety,has severe imsomnia,and has such highly tuned senses for want if a better word that hes had an eating disorder all his life he literally lives on a yoghurt.milk and a roll a day hes never tried a hot meal never tried meat,veg,cereal,rice,nothing,we have just managed to get his psychiatrist to refer him to a OT to work with him on it that was a battle!now im so sorry you seem to be getting nowhere,it is a horrible feeling.what u need to do is keep fighting,keep pestering anyone and everyone in education,your worker who did his ehcp,,thry have a duty to help you get him into somewhere i appreciate you have found a school u like but if thats the case theres no place till next year you should make these people do their job and find him something,my daughter is 15 and asd and adhd,,school failed her too we ve been at our wits end,but she has just started at a specialist school and is a different girl shes the happy fun one we lost two yrs back,speak to home education advisors,speak to your education department until they do start listening and you tell them time and time again we were told there were no places for our daughter suddenly when she didnt go to school for six weeks flat they found a full time place please persevere it is hard but u will find that one person who will turn it all around good luck with it all x

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  • hi,our son is 16 and was basically thrown out of his mainstream high school as they couldnt cope,didnt understand autism or anything that goes with it,,he is aspergers with very high anxiety,has severe imsomnia,and has such highly tuned senses for want if a better word that hes had an eating disorder all his life he literally lives on a yoghurt.milk and a roll a day hes never tried a hot meal never tried meat,veg,cereal,rice,nothing,we have just managed to get his psychiatrist to refer him to a OT to work with him on it that was a battle!now im so sorry you seem to be getting nowhere,it is a horrible feeling.what u need to do is keep fighting,keep pestering anyone and everyone in education,your worker who did his ehcp,,thry have a duty to help you get him into somewhere i appreciate you have found a school u like but if thats the case theres no place till next year you should make these people do their job and find him something,my daughter is 15 and asd and adhd,,school failed her too we ve been at our wits end,but she has just started at a specialist school and is a different girl shes the happy fun one we lost two yrs back,speak to home education advisors,speak to your education department until they do start listening and you tell them time and time again we were told there were no places for our daughter suddenly when she didnt go to school for six weeks flat they found a full time place please persevere it is hard but u will find that one person who will turn it all around good luck with it all x

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