Well, I am not even sure whether I should be posting here as we are still no further forward as regards a diagnosis and, from my perspective, our son's problems seem to straddle various labels. But I feel desperate. He is so alone. No friends, no further education, nothing outside the house, very little inside the house (food and the computer). He can go for weeks without going out, then, suddenly, switches to being out from the early hours (5 or 6 am, while we are asleep) and returning mid afternoon, going straight into his room and not sayng anything. This is what has happened for the past couple of days and I don't even know whether he has eaten.
Communication is extremely limited and generally we have adopted an easy, person-centred approach, respecting his privacy and at the same time making it clear we support him. He is 21, after all.
But I find this level of isolation extremely worrying. Moreover, we have now been in this stalemate situation for a couple of years and we're at our wits end as to what to do. I basically read and read but learn nothing of any help and then do a lot of worrying. None of this leads me anywhere. My gentle, tentative efforts to offer support are rejected, my attempts at basic conversation just blanked or rejected. I sometimes resort to a couple of simple questions through the door and get monosyllabic answers.
I don't see what parents are supposed to do and, even when we get to see a professional (the early intervention team up til now and the autism team in July - at the soonest) they don't seem able to offer any more. Is this how life just has to be?
