Talking through the door

Well, I am not even sure whether I should be posting here as we are still no further forward as regards a diagnosis and, from my perspective, our son's problems seem to straddle various labels.  But I feel desperate.  He is so alone.  No friends, no further education, nothing outside the house, very little inside the house (food and the computer). He can go for weeks without going out, then, suddenly, switches to being out from the early hours (5 or 6 am, while we are asleep) and returning mid afternoon, going straight into his room and not sayng anything.  This is what has happened for the past couple of days and I don't even know whether he has eaten. 

Communication is extremely limited and generally we have adopted an easy, person-centred approach, respecting his privacy and at the same time making it clear we support him.  He is 21, after all. 

But I find this level of isolation extremely worrying.  Moreover, we have now been in this stalemate situation for a couple of years and we're at our wits end as to what to do.  I basically read and read but learn nothing of any help and then do a lot of worrying.  None of this leads me anywhere. My gentle, tentative efforts to offer support are rejected, my attempts at basic conversation just blanked or rejected.  I sometimes resort to a couple of simple questions through the door and get monosyllabic answers. 

I don't see what parents are supposed to do and, even when we get to see a professional (the early intervention team up til now and the autism team in July - at the soonest) they don't seem able to offer any more.  Is this how life just has to be?

Parents
  • Yes, i think there is much in what you say.  It does feel as though he is more of a teenager still, not yet ready to make the transition. 

    I am not sure about the household rules, although there will be things of which I'm not aware or of which I haven't become fully conscious.  We have a very relaxed household, generally speaking, but I can only guess at the possible effects of any unspoken rules or expectations.  Even then, I'm not sure how to ease off on these.  They're probably just kind of "out there."  My acknowledged worry about his reclusiveness could be interpreted as a demand that he be other than what he is, our older son's universaity life could be seen as an expectation that he also takes this route.  I can imagine, but he's not voiced anything.  

    The room sharing:  our sons shared a room until they were around 15/13 and problems began to emerge.  Our younger son stopped talking to our older son (no arguments, just became more and more aloof and unfriendly) and there was a stony atmosphere.  Both wanted their own room and we reshuffled things to allow them each their privacy.  At the time I felt disappointed as I could remember enjoying sharing a room with my sister and talking together late into the night.  But I reasoned that this was part of growing up and that boys might somehow be different.  I now know it was more than that.  

    The computer:  Any suggestion of any rules has tended to backfire badly on us.  I recently had trouble getting my son to sleep in his own room, instead of in an armchair or on the floor and, although I started off gently, this resulted in an argument, following which he took all his money and left the house to escape the "negative energy", being brought back by the police a day or so later.  The computer started off downstairs with various rules attached but, over the years, we have been ground down as this also seemed to become a major issue and flashpoint.  He now just moves the computer into whichever room he's sleeping, something which varies depending upon the negative energy and where he perceives it to be worst.  I think it is fair to say that we are treading on eggshells and I fear raising the subject (if he would even talk to me, that is).

    I probably need to have a closer look at any unspoken rules, though.  These will probably have built up over time and become less obvious to me but, as with all families, they will surely be there.  I wonder whether the things we say, however gentle, are contradicted by the weight of "energy" that has built up over the years?  this could prove very hard to undo.  There are also, no doubt, negative energies created by my husband's severe depression and my own reactions to a chronic physical illness.  These will be swirling around too and we couldn't pretend otherwise.  To be honest, I was hoping my son would be able to find more outside the home in order to dilute the effects of what's going on inside.  This looks increasingly unlikely, although we have made it clear that we would support him in whatever he wanted (i.e. with the proviso that it's safe, whatever takes his interest or gives him pleasure and not necessarily the conventional paths through life which, in our experience, have been grossly over-rated).

     

Reply
  • Yes, i think there is much in what you say.  It does feel as though he is more of a teenager still, not yet ready to make the transition. 

    I am not sure about the household rules, although there will be things of which I'm not aware or of which I haven't become fully conscious.  We have a very relaxed household, generally speaking, but I can only guess at the possible effects of any unspoken rules or expectations.  Even then, I'm not sure how to ease off on these.  They're probably just kind of "out there."  My acknowledged worry about his reclusiveness could be interpreted as a demand that he be other than what he is, our older son's universaity life could be seen as an expectation that he also takes this route.  I can imagine, but he's not voiced anything.  

    The room sharing:  our sons shared a room until they were around 15/13 and problems began to emerge.  Our younger son stopped talking to our older son (no arguments, just became more and more aloof and unfriendly) and there was a stony atmosphere.  Both wanted their own room and we reshuffled things to allow them each their privacy.  At the time I felt disappointed as I could remember enjoying sharing a room with my sister and talking together late into the night.  But I reasoned that this was part of growing up and that boys might somehow be different.  I now know it was more than that.  

    The computer:  Any suggestion of any rules has tended to backfire badly on us.  I recently had trouble getting my son to sleep in his own room, instead of in an armchair or on the floor and, although I started off gently, this resulted in an argument, following which he took all his money and left the house to escape the "negative energy", being brought back by the police a day or so later.  The computer started off downstairs with various rules attached but, over the years, we have been ground down as this also seemed to become a major issue and flashpoint.  He now just moves the computer into whichever room he's sleeping, something which varies depending upon the negative energy and where he perceives it to be worst.  I think it is fair to say that we are treading on eggshells and I fear raising the subject (if he would even talk to me, that is).

    I probably need to have a closer look at any unspoken rules, though.  These will probably have built up over time and become less obvious to me but, as with all families, they will surely be there.  I wonder whether the things we say, however gentle, are contradicted by the weight of "energy" that has built up over the years?  this could prove very hard to undo.  There are also, no doubt, negative energies created by my husband's severe depression and my own reactions to a chronic physical illness.  These will be swirling around too and we couldn't pretend otherwise.  To be honest, I was hoping my son would be able to find more outside the home in order to dilute the effects of what's going on inside.  This looks increasingly unlikely, although we have made it clear that we would support him in whatever he wanted (i.e. with the proviso that it's safe, whatever takes his interest or gives him pleasure and not necessarily the conventional paths through life which, in our experience, have been grossly over-rated).

     

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