Hi and Help needed feeling desperate

Hi I don't know where to start, i am feeling really emotional, angry and at my wits end.  I have 2 children 5 and 3, the oldest child has suspected asd, i have known there was something not right since he was really small but been fobbed off with, its just a stage he's going through etc etc.  Anyway he's in year 1 at school and he still hasn't got enough support, his vocabularys good but he can't read or write and is really struggling, he goes in to melt down almost everyday, hits his little brother and me and has also started been aggressive in school.  We cannot get through to him, that he is hurting others, he doesn't understand concequences and repeats the same behaviour over and over.  He is unable to do tasks upon request, no matter how many times we ask him.  He doesn't have any friends and social events, childrens parties etc he will cling to me the whole time.  Often he gets very anxious and will refuse to do things, such as swimming lessons etc.  Everything we do is a struggle with him, it hurts so bad cause hes a lovely child but i can't get through to him, i don't know what to do, Do i carry on taking him to partys? in the hope he will get used to it or am i damaging him further by forcing him in to situations hes not comfortable.  It breaks my heart cause i love him so much and cause hes not been diagnosed we have no support and no idea how to deal with it, this is why i'm so angry, all i get told is the spectrums so wide and each childs different, this seems a cop out to me.  Does anyone actually understand this condition really and how to help a child with it.  Sorry for the rant but just need some advice from someone thats experienced any of this and how to manage it.

Parents
  • Hi Sarahjen

    I too have a 2 year old son who has autism i love him so very deeply and it breaks my heart that he cannot communicate very well with me. I am in the early stages of diagnonis and it feels like my world has fell apart. The first step to helping your son is to get him diagnosed. He clearly needs additional help. My son frequently meltdown when over stimulated by noise, lights, people ect. He can and will improve with the correct support. March straight into the school office and demand help for your son. Do not be fobbed off. Your son is there just as mine is he loves you so much. Do not give up on him, he needs you more than ever he just cannot show it but thats nobodys fault. Please keep in touch. Stay strong, perhaps to start with have the school move his desk to a quiter area of the classroom. I feel for you i realy do. But you are not alone, although i know if often feels that way.

Reply
  • Hi Sarahjen

    I too have a 2 year old son who has autism i love him so very deeply and it breaks my heart that he cannot communicate very well with me. I am in the early stages of diagnonis and it feels like my world has fell apart. The first step to helping your son is to get him diagnosed. He clearly needs additional help. My son frequently meltdown when over stimulated by noise, lights, people ect. He can and will improve with the correct support. March straight into the school office and demand help for your son. Do not be fobbed off. Your son is there just as mine is he loves you so much. Do not give up on him, he needs you more than ever he just cannot show it but thats nobodys fault. Please keep in touch. Stay strong, perhaps to start with have the school move his desk to a quiter area of the classroom. I feel for you i realy do. But you are not alone, although i know if often feels that way.

Children
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