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Treatments and therapies without a diagnosis

MarinaTs

Hello, this question is with regards my 31 year old sister. Does anyone have any opinions or advice regarding whether it would be advisable and possible to avail of different services and treatments without a diagnosis for autism. The reason being that my sister had an assessment done some years ago which informed us that she is not on the spectrum. We have doubts about this, and so if possible would prefer to avoid putting her through the ordeal, time and expense of seeking another assessment. She has other comorbid conditions, so I feel it may be of benefit to try to treat her perhaps holistically initially, in the hopes that the specific therapist will know how to proceed. Basically i would just love to get her started on something. As a 31yo, she has really fallen through the net and needs help getting back into gear.

Any ideas would be welcome. 

Thanks very much

Parents

  • A little caution needed with this idea about services and treatments with or without a diagnosis of autism. There are certain things that can be done to help people with autism alleviate life's difficulties, but it is not curable, or in the sense of therapies, an illness or a disease.

    Perhaps if you could clarify the comorbid conditions and how you think she manifests autism, more suggestions could be offered.

    Some people get misdiagnosed and treated for years for other conditions that overlap or seem similar to autism, and that is a tragedy of the system. If she has quite serious difficulties and autism could be a contributary factor you really need to get expert advice.

    If she was managing in life but has lately got into difficulties that might indicate a break down of acquired autism coping strategies, and again would need the right advice.

    If the autism indications are slight, and the comorbid conditions not really any clearer indication of why things have gone wrong for her, it is not really a context for services and therapies, which would apply to more marked autism difficulties.

    The usual problem for people with an autism diagnosis is getting any help at all.

    Maybe a bit more information on what's involved would help people comment.

Reply

  • A little caution needed with this idea about services and treatments with or without a diagnosis of autism. There are certain things that can be done to help people with autism alleviate life's difficulties, but it is not curable, or in the sense of therapies, an illness or a disease.

    Perhaps if you could clarify the comorbid conditions and how you think she manifests autism, more suggestions could be offered.

    Some people get misdiagnosed and treated for years for other conditions that overlap or seem similar to autism, and that is a tragedy of the system. If she has quite serious difficulties and autism could be a contributary factor you really need to get expert advice.

    If she was managing in life but has lately got into difficulties that might indicate a break down of acquired autism coping strategies, and again would need the right advice.

    If the autism indications are slight, and the comorbid conditions not really any clearer indication of why things have gone wrong for her, it is not really a context for services and therapies, which would apply to more marked autism difficulties.

    The usual problem for people with an autism diagnosis is getting any help at all.

    Maybe a bit more information on what's involved would help people comment.

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