Really struggling

Hi, this is my first time on this site so I'm really hoping I can get some support.

I'm a young single mum to a 4 and a half year old son with severe autism. I really don't have much of a support system, my mum and dad help out when they can but to be honest they're really struggling with my sons behaviour too.

The summer holidays are really taking its toll on both me and my son, his behaviour has gotten so much worse.His temper is awful and he hits me all of the time, I really don't like to admit it but I'm not coping well at all, the nights aren't good at all right now he's regressed back to sleeping in my bed and he wakes 9/10 times a night and gets very angry and hits and kicks me. I've told DS's paediatrician about it but all we get is referrals that we never hear from again, he has been truly let down by his health care professionals he's non verbal and we've had one speech therapy appointment since his diagnosis in 2013, I've chased down appointments and we just get told were 'on the list' and when we finally got an appointment in January we sat through it telling them everything for an hour and 20 minutes only to be told the woman I was speaking to 'doesn't deal with autism'.

I'm really at the end of my tether,I'm sorry for the long rant, I'm not trying to feel sorry for myself but I really have no one to speak to, I've really never felt so alone.

I'm hoping this post will give me some support/advice that I desperately need.

Thank you so much in advance 

Parents
  • Hi TommyMum,

    Just wanted to say there is nothing wrong with admiting your struggling to cope, without support it is a truely difficult thing to cope with. Do you have a Social Worker (Disabled Team), if not perhaps you could give your local Disabled Team a call and ask them to come out and make an assessment for both You (Carers Assessment) and your Son to identify your needs fully. I hope this info helps a little and you find the right support.

Reply
  • Hi TommyMum,

    Just wanted to say there is nothing wrong with admiting your struggling to cope, without support it is a truely difficult thing to cope with. Do you have a Social Worker (Disabled Team), if not perhaps you could give your local Disabled Team a call and ask them to come out and make an assessment for both You (Carers Assessment) and your Son to identify your needs fully. I hope this info helps a little and you find the right support.

Children
No Data