• Replies 5 replies
  • Subscribers 65 subscribers
  • Views 909 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Really struggling

tommymum92

Hi, this is my first time on this site so I'm really hoping I can get some support.

I'm a young single mum to a 4 and a half year old son with severe autism. I really don't have much of a support system, my mum and dad help out when they can but to be honest they're really struggling with my sons behaviour too.

The summer holidays are really taking its toll on both me and my son, his behaviour has gotten so much worse.His temper is awful and he hits me all of the time, I really don't like to admit it but I'm not coping well at all, the nights aren't good at all right now he's regressed back to sleeping in my bed and he wakes 9/10 times a night and gets very angry and hits and kicks me. I've told DS's paediatrician about it but all we get is referrals that we never hear from again, he has been truly let down by his health care professionals he's non verbal and we've had one speech therapy appointment since his diagnosis in 2013, I've chased down appointments and we just get told were 'on the list' and when we finally got an appointment in January we sat through it telling them everything for an hour and 20 minutes only to be told the woman I was speaking to 'doesn't deal with autism'.

I'm really at the end of my tether,I'm sorry for the long rant, I'm not trying to feel sorry for myself but I really have no one to speak to, I've really never felt so alone.

I'm hoping this post will give me some support/advice that I desperately need.

Thank you so much in advance 

Parents

  • Hi Cluck, When I was little I always refused to eat unfamiliar food. I have a great many food allergies and sensitivities which abated for a while as I grew up, but have returned now.

    I still have difficulty working out what upsets me. I have days when my mood plummets and I get snappy with people and have to go somewhere quiet and work out what is troubling me. This is called Alexithymia, emotional blindness and is often found in those with ASD.

    You could try having a picnic. These days you can buy a lot of picnic food to save time, but make your son something he specially likes, even if it is just bread and jam or peanut butter. You say he enjoys the beach, so having food he is confident about may help. You could test this by having a picnic in the garden one day, to see how he likes it. This way, you can tackle each aspect of the holiday situation separately to see which cause the problems.

    Best wishes

Reply

  • Hi Cluck, When I was little I always refused to eat unfamiliar food. I have a great many food allergies and sensitivities which abated for a while as I grew up, but have returned now.

    I still have difficulty working out what upsets me. I have days when my mood plummets and I get snappy with people and have to go somewhere quiet and work out what is troubling me. This is called Alexithymia, emotional blindness and is often found in those with ASD.

    You could try having a picnic. These days you can buy a lot of picnic food to save time, but make your son something he specially likes, even if it is just bread and jam or peanut butter. You say he enjoys the beach, so having food he is confident about may help. You could test this by having a picnic in the garden one day, to see how he likes it. This way, you can tackle each aspect of the holiday situation separately to see which cause the problems.

    Best wishes

Children
No Data