A sudden change in behaviour, is this normal? I'm scared of my sister!

So my 8 year old sister Amy is on the autism spectrum. She has a limited vocabulary and flaps her hands a lot, but she has always been quite well behaved and easy to manage. Her sensory issues (mainly sound I think) are not so bad that she has meltdowns often, she quite accepting of change and breaks in routine.

Recently we went on holiday to Greece in an all inclusive hotel, she likes planes and hadn't had a major problem with holidays before. Well it was very very hot  for her and she got burnt on her back in the pool so therefore didn't want to leave the hotel anymore and flat out refused. It was ok until one day she woke up a little...different. She seemed tired, moody and totally unlike herself, that was when it happened after I told her off for something, this HUGE tantrum. It was the worst I had ever seen ever. She was screaming and roaring,throwing  things, threatning us and calling herself a monster and a "horrible girl". She hit her dad, hit herself and just screamed and cried for half an hour, it made my mam cry we had never seen it get to that. It must have been a full on meltdown.

Ever since then (it was last week we came back from the holiday) she seems changed. She is acrring a lot naughtier and is having frequent tantrums which nevery happened before this. She sometimes gets irritated and cries for seemingly no reason, I asked her about it and got her to draw how she feels. She describe that her head hurts and there's monsters "popping" her head and they only pop away when she happy and content like playing her Nintendo game. I am honestly quite scared of her since that day, she seems off and not herself at all. She used to be so happy, well behaved and relaxed, she threw the occasional tantrum but not to those extremes. Some days she just says she doesn't know what to do or what's wrong and she just wants to destroy things. we need some help!

Parents
  • It sounds to me like she might be ill.  An ear infection could cause head pain and 'popping' noises.

    It is fairly normal for things to seem to get worse as ASD kids grow up. ASD is a developmental difference: all babies are pretty much autistic, but as we get older the gap between ASD's and NT's gets bigger, and we also get more aware of it.  More is expected of older kids. So things get more stressful and ASD's may have meltdowns more often.  If she has been ill and in pain too then that's more stress, and more likely that things will get too much for her generally.

    Don't panic though, what I've said doesn't mean she's going to get worse and worse: she is getting better really, and learning how to live in the world. She might just go through some bad patches (especially if she is ill!)  Try and be calm, and suggest mum and dad take her to the doctor for a checkup.  If you haven't already, tell them what she's told you about the pain and 'popping'.

Reply
  • It sounds to me like she might be ill.  An ear infection could cause head pain and 'popping' noises.

    It is fairly normal for things to seem to get worse as ASD kids grow up. ASD is a developmental difference: all babies are pretty much autistic, but as we get older the gap between ASD's and NT's gets bigger, and we also get more aware of it.  More is expected of older kids. So things get more stressful and ASD's may have meltdowns more often.  If she has been ill and in pain too then that's more stress, and more likely that things will get too much for her generally.

    Don't panic though, what I've said doesn't mean she's going to get worse and worse: she is getting better really, and learning how to live in the world. She might just go through some bad patches (especially if she is ill!)  Try and be calm, and suggest mum and dad take her to the doctor for a checkup.  If you haven't already, tell them what she's told you about the pain and 'popping'.

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