Help with Tourettes please!

I am not sure if anyone can help with this....I have posted before about issues concerning our son's autistic tendencies, but he was also diagnosed with Tourettes and this now seems to be coming into play more seriously than the autistic tendencies, although I know there are very many overlaps and some consider Tourettes to be part of the spectrum.

What started out as small 'ticks' like throat clearing and repetitive little coughs, eye blinking and mouth-wiping for example, are now changing to more aggressive/more noticable ticks, like whistling in the middle of sentences, very wide mouth opening (causing split corners of his lips) and severe head shakes which hurt his shoulders and neck and cause discomfort and are exhausting for him. 

Coupled with this is huge amounts of aggression, which, again has overlaps with autism, and blurting of very rude outbursts when he is angry.

We were warned that the path might be that the small ticks might increase to where they are now, with a possibilty that they might escalate into inadvertant lashing out at people. He already lashes out at us in anger, but it is our very real worry that the Tourettes side of things will lead to the next stage and begin to involve others. His teacher at school has been distressed by the violence of his latest ticks, but at school, his behaviour issues are kept at bay, with this exception.

Does anyone else have a child that suffers in this way, as our son truly does suffer as he struggles to make sense of why he behaves like this and we are suffering from the worry that we do not know how to help him adequately.

Obviously I can do my own research, but I would be really appreciative if there is someone who could reply if they are having a similar experience! Many thanks!

Parents
  • Hi Longman

    Thank you for posting. 

    For the most part, our son's aggression comes out of the tiniest things, not provoked by our requests for discussion...rather more about anything that he considers to be 'wrong'. A great deal of the issues arise from his perception of 'unfairness', but it can come if things don't feel right, things are not being done as he sees fit, if he doesn't get his own way, if his brother is challenging him in any way, if he considers that a rule has been broken...etc, etc.... A lot of the time, I can clearly see the trigger, and although his reaction is clearly over the top, I can understand why it happens. The rest of the time though, we cannot begin to understand the need for the meltdown!

    When we try to discuss his behaviour with him, it is usually unforthcoming...but he is only 8 and struggles with emotions and being able to explain why things happen the way they do. I like your point about not facing him straight on though...I can see how it is less confrontational side on so I'll definitely try that when we talk.

    I think you are right about school...I'll have to think how to tackle the discussion on that one pretty soon. The book sounds great. I'll certainly investigate that too.

    Thank you so much for your time and advice.

     

     

Reply
  • Hi Longman

    Thank you for posting. 

    For the most part, our son's aggression comes out of the tiniest things, not provoked by our requests for discussion...rather more about anything that he considers to be 'wrong'. A great deal of the issues arise from his perception of 'unfairness', but it can come if things don't feel right, things are not being done as he sees fit, if he doesn't get his own way, if his brother is challenging him in any way, if he considers that a rule has been broken...etc, etc.... A lot of the time, I can clearly see the trigger, and although his reaction is clearly over the top, I can understand why it happens. The rest of the time though, we cannot begin to understand the need for the meltdown!

    When we try to discuss his behaviour with him, it is usually unforthcoming...but he is only 8 and struggles with emotions and being able to explain why things happen the way they do. I like your point about not facing him straight on though...I can see how it is less confrontational side on so I'll definitely try that when we talk.

    I think you are right about school...I'll have to think how to tackle the discussion on that one pretty soon. The book sounds great. I'll certainly investigate that too.

    Thank you so much for your time and advice.

     

     

Children
No Data