Clueless!

Good evening all,

I am busy navigating my way around the world of ASD, my 13 year old boy was diagnosed in Jan this year. It was not a huge surprise, I had been aking for support since her was a toddler...I completed a 12 week parent class, and was going to be put on another! But luckily we managed to access support via a different agency and here we are! Since diagnosis we have heard nothing and received no support. I have badgered the school adn finally go them to accept that they must be involved with his diagnosis, and put things in place...but his anger (when anxious) at home is so hard to deal with. He has always had meltdowns. People that have not witnessed them, think that we exaggerate but it is HELL! HE has had one tongiht, as he is settling back into school life after the easter hols (always worse first week back). He is as big as me and when he switches, he is unreachable. Problem is, you cant contain him, he follows, goading...and will just keep on going...its awful...I feel so sorry for my other son, he is 15..it is so difficult for him too. I have contacted a link on here, to see if we can access some family seminar and really would like some anger management for him too...we wil see....Naively I thought diagnosis would be the beginning of help for us all, but we have just been left swimming alone in a deep dark sea... THanks for listening x

  •  Beagle01

    Everything you say resonates with me. My son is only 8 but I have been trying to get help and answers for years. He was finaly assessed last month but no diagnosis given yet. Despite this I have been able to access help through our local autism charity. I am buying a subsidised behaviour intervention package from them. I wonder if something like this might help you too. They are going to do a report and then provide up to 4 sessions with one of their behaviour management specialists. My son's behaviour when angry is hell too and he does the goading as well as hitting, kicking etc and damaging things so I really empathise with you. Seems to me like we will be on our own post diagnosis too. The consuultant told me they were so stretched that she wouldn't be able to offer a follow up appointmet and would just be advising me of the diagnosis by phone once she had heard back from my son's school.