School struggles

Hi there. Sorry this might be a long post. I have some social issues and I am not very good at communicating concisely.

I have a son nearing 13 who has just been diagnosed ASD. He's had issues for a number of years but has taken a while for diagnosis for various reasons. We're still awaiting an assessment for ADHD and Dyspraxia but not sure how long that will take.

He's had some issues in school since, well, always really. He finds it really difficult to make friends and unfortunately quite often seems to become the target of bullies. He is being bullied in his current school, I have spoken to them twice about it but it still seems to be happening. The school counsellor is very good but is stretched extremely thinly so it's sometimes hard to get a hold of her to talk to about it. I've dealt primarily with her up until this point because she's been aware that my son has some difficulties and asd traits, whilst the other staff have been aware of general problems but we haven't had a formal diagnosis to point towards. I think some of the children find it very difficult to understand my son, they tell him very often that he's annoying or a loser or a waste of space. One day recently he came home very upset because they'd told him to kill himself. I called the head of KS3 who said she would speak with the students involved but I don't really know what came of it. My son still gets comments from them, the other day in class he asked a question beginning: 'Why...' and half way through someone interrupted him and said "Why were you born". He says that the teachers aren't aware what's going on and I feel like it's difficult for him to speak to a teacher and explain what's going on. He also doesn't like me intervening and is very reluctant most of the time for me to report things to the school for fear of making it worse. I'm really worried because this is having a big impact on his self-esteem. I feel like the way he views the situation is that they are targeting him and just getting away with it. 

He has a tendency to rock/tap/click and a few other things which the teachers highlighted at parents' evening. When he's at home he has things that he can play with when we're talking or he's doing homework and it actually helps him focus and stop doing those things, but obviously school is a different environment and I don't think they'd allow it, also I'm not sure if it might draw more attention to him which he obviously doesn't want. I understand it must be distracting for other students but I think it's difficult for him to just stop doing what he's doing, he gets agitated and it's stressful when he can't do those things. I'm not sure whether I should be discouraging him from these things but I feel like they're comforting to him and I don't want him to feel ashamed of them. He's been sent out from lessons before, and the teacher has said to him in a nice way, can you please stop doing that. He had a day where he was tapping a lot and a teacher asked him to step outside so she could concentrate and that he could come back in after. I understand she needs to focus but it makes me feel uneasy that a) it draws attention to my son in an obvious way, and he tells me that they say he's doing something like that sometimes when he really hasn't been and b) I think it makes him feel ashamed and that it reinforces the idea that he is annoying.

He does very well academically and attains mostly As but his teachers seem to push him a lot for more in areas that he's already doing well in, and they sort of just ignore when I try to explain something is difficult for my son and assume that I'm making an excuse for him. They all had a consistent message of "he needs to transfer what he can orally express onto paper", but I don't know how to translate that in real terms, I don't know if I understand how to do that.

Sorry for the rant, I'm not good at formulating things into questions because I'm not sure what information is relevant. I feel a bit stuck and if anyone had any advice for me on any of these things I'd really appreciate it. Thank you very much for your time.

Parents
  • Hi anomia, and welcome,

    I read you post with familiarity to my own sons experience and wanted to comment.

    Their is strong evidence that Stimming, (the clicks noises and movements your child makes) is soothing to him and it would be ill advised to prevent him from doing so without replacing his stimm with a different more covert stimm. My son hand flapped a lot, but later, when he realized it was drawing attention to himself, he switched to using bluetack in his pocket to queeze in order to stimm at times of stress or when needed for concentration. This more covert act, lessened his bullying slightly, but not by much.

    The School your child is at, don't sound very Autism aware either and that isn't helpful to a child that needs to stimm to concentrate or indeed has the level of need your son has. Combined with the teachers, the pupils are actually serving to reinforce your sons poor sense of self worth and that is unacceptable.

    My suggestion would be to talk with the head of the School and ask for some SEN and bullying awareness to be initiated as part of the schools PSHE lessons for pupils and some teacher trainning also.

    This video is widely used to help teachers understand the world those with ASD inhabit in School, and reinforces that if they take something out of the toolbox, they need to replace it.

    www.youtube.com/watch

    Your son is unlikely to be an all-rounder. His spikey profile is what makes him unique and their will always be areas in which he struggles, but that's ok. Accepting that, is a key part of the process of moving forward and some skills can be improoved with repeated experience and consolidation, so don't give up, but don't make weak areas too much of an issue either. Using his strengths to help him navigate his weaknesses is the key and for wellbeing it may be worth looking at a book by Valerie Gaus called, 'Living Well On The Spectrim'

    www.amazon.co.uk/.../1606236342

    It's a workbook which helps you identify your strengths and look at the weaknesses in a more positive light.

    If your son does not already do so, it may be worth looking at assitive software or extra time for exams and potentially a reader or scribe, If he also has these sorts of difficulties.

    Many on the spectrum have organizational issues related to their executive function. (Forgetfullness, can't find things, loses things, struggles to organise etc.) If this is your son, then it's likely that he may have difficulty organising his thoughts also, for homework etc. If, as sometimes happens, he is also Dyslexic as well as Dyspraxi,c then their are programs for computers to assist their too. If you would like further info I'm happy to help with some suggestions.

    I strongly urge you to challenge the School. My own son was near breaking point before any help was given and we eventually had to withdraw him from his School for his own mental health, until a new School could be found.

    Your son is at a difficult age. You might like to consider support for him by access to facebook or other age appropiate Autism forums, so he can talk over any fears or anxieties he has with those that also suffer with ASD. If you'd like som links I could send you some.

    My heart goes out to you,

    I wish you all the best. Keep positve and ask here if you need any help

    Coogybear

Reply
  • Hi anomia, and welcome,

    I read you post with familiarity to my own sons experience and wanted to comment.

    Their is strong evidence that Stimming, (the clicks noises and movements your child makes) is soothing to him and it would be ill advised to prevent him from doing so without replacing his stimm with a different more covert stimm. My son hand flapped a lot, but later, when he realized it was drawing attention to himself, he switched to using bluetack in his pocket to queeze in order to stimm at times of stress or when needed for concentration. This more covert act, lessened his bullying slightly, but not by much.

    The School your child is at, don't sound very Autism aware either and that isn't helpful to a child that needs to stimm to concentrate or indeed has the level of need your son has. Combined with the teachers, the pupils are actually serving to reinforce your sons poor sense of self worth and that is unacceptable.

    My suggestion would be to talk with the head of the School and ask for some SEN and bullying awareness to be initiated as part of the schools PSHE lessons for pupils and some teacher trainning also.

    This video is widely used to help teachers understand the world those with ASD inhabit in School, and reinforces that if they take something out of the toolbox, they need to replace it.

    www.youtube.com/watch

    Your son is unlikely to be an all-rounder. His spikey profile is what makes him unique and their will always be areas in which he struggles, but that's ok. Accepting that, is a key part of the process of moving forward and some skills can be improoved with repeated experience and consolidation, so don't give up, but don't make weak areas too much of an issue either. Using his strengths to help him navigate his weaknesses is the key and for wellbeing it may be worth looking at a book by Valerie Gaus called, 'Living Well On The Spectrim'

    www.amazon.co.uk/.../1606236342

    It's a workbook which helps you identify your strengths and look at the weaknesses in a more positive light.

    If your son does not already do so, it may be worth looking at assitive software or extra time for exams and potentially a reader or scribe, If he also has these sorts of difficulties.

    Many on the spectrum have organizational issues related to their executive function. (Forgetfullness, can't find things, loses things, struggles to organise etc.) If this is your son, then it's likely that he may have difficulty organising his thoughts also, for homework etc. If, as sometimes happens, he is also Dyslexic as well as Dyspraxi,c then their are programs for computers to assist their too. If you would like further info I'm happy to help with some suggestions.

    I strongly urge you to challenge the School. My own son was near breaking point before any help was given and we eventually had to withdraw him from his School for his own mental health, until a new School could be found.

    Your son is at a difficult age. You might like to consider support for him by access to facebook or other age appropiate Autism forums, so he can talk over any fears or anxieties he has with those that also suffer with ASD. If you'd like som links I could send you some.

    My heart goes out to you,

    I wish you all the best. Keep positve and ask here if you need any help

    Coogybear

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